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24/7 -Vestibular Migraine - Living With A Chronic Illness
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16,731 Views ā€¢ Aug 20, 2019 ā€¢ Click to toggle off description
My experience with Vestibular Migraine (VM). Useful links:

FL-41 glasses - UK Sports Eyewear: www.uksportseyewear.co.uk/section.php/78/1/photophā€¦

FL-41 glasses - Axon Optics: www.axonoptics.com/fl-41-glasses/

Sheffield balance clinic:sheffieldbalance.co.uk/

Amy Shockett: Ā Ā Ā /Ā @amyshockett1662Ā Ā 

Disclaimer: I am not a Doctor and cannot offer medical advice. If you require professional advice please consult with your Doctor.
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Views : 16,731
Genre: People & Blogs
Date of upload: Aug 20, 2019 ^^


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RYD date created : 2022-01-20T18:39:31.356507Z
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YouTube Comments - 385 Comments

Top Comments of this video!! :3

@ImFastrnU

2 months ago

I have never heard anyone describe the symptoms so well. That is almost exactly whats happening to me. All of the tests, multiple doctors, it's awful and I'm finally hearing someone else outside of me saying it outloud. Im in the US and have been suffering for 15 years. Probably before they even knew VM was a thing and didn't know what to do with me.

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@marthamarshall7088

1 year ago

I also was diagnosed with Vestibular Migranes and the miracle for me was botox and a nerve block! My Neurologist stabbed my head with botox with a tiny needle about 40 times all over my scalp and a week later I received a nerve back at the lower portion of of my head. It made my life way better and brought my Vestibular disorder into remission! I have to go back every 3 months for botox.

9 |

@kathygreen6043

1 year ago

33 years with this and Menierre's. Pure and unadulterated torture..

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@shazzamm12

4 years ago

"As you were, you'll be again." ā¤

20 |

@nicolejs9009

3 years ago

I've had debilitating migraines for 30 years. I'm 51 now. The hardest part is the loneliness and the people who should love and support you walk away. Having my dreams for my life just gone. It's stressful when you know one is coming on. Listening to your story made me feel less alone. Thanksfor your suggestions.

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@omnilism

9 months ago

I'm now 4 and a half years into 24/7 vestibular migraines. Its brutal. I have a similar story. It feels like I'm going to faint every second that I'm alive and have never ending headaches, dizziness, light headedness and more. Its torture. But I have come a long way into coping with it. I'm back to work. I'm starting online school soon. I exercise a lot which helps indirectly. Makes my tolerance stronger and I think slightly helps the symptoms. But its usually temporary so I have to keep up with the exercise a lot. Eating healthy helps some too. I have tried tons and tons of medications and none have helped enough to really to be worth it for me. Vestibular physical therapy helps slightly but that is also temporary so you have to keep up with it

4 |

@sandlinfamlin

1 month ago

Thank you for sharing your experience; you're so pleasant to. We never know when we will help lots of people for so many years by speaking out. I was nodding my head with everything you said. I've been dizzy and All The Things for about 5 years and just last year a specialist neurologist (not my regular one) immediately diagnosed me with this and PPPD. I'm still looking for the answers - looks like more to this story - because i want to raise my son and need to work to have health care. I'm in the US, feel really stuck in an impossible situation. Anyway, thanks for your help today! I have a little more motivation again and that's what I needed. šŸ˜Š

1 |

@hotff50

10 months ago

Definitely can empathize. I have had this condition for about 7 months now. Long journey but getting better. Taking Aimovig and Effexor together and my symptoms have improved about 80%. Some days are worse than others but there is a light at the end of the tunnel. For anyone suffering please keep the faith, there is hope.

3 |

@allysonf9160

4 years ago

Thanks so much for posting this. I have been suffering with vertigo and other symptoms for around 10 months and have only recently been diagnosed with probable vestibular migraine and Persistent Postural Perceptual Dizziness (PPPD). Just hearing about others having similar symptoms is reassuring for me particularly during stressful moments which are happening everyday and making life unbearable. There are definitely some days when it all feels too much, but I'm trying to hang on in there and your story gives me courage. God bless everyone who is suffering with similar symptoms and thanks again Matt for highlighting a very hidden and not well understood illness.

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@makennahipp3137

4 years ago

I just want to say thank you for making this video, Iā€™m experiencing everything you are! Seriously you donā€™t know how much this helped me!

21 |

@PuzzleTime2

3 weeks ago

Just starting on the journey with Vistibular Migraine. Somedays it is 24/7. I feel better listening to you. Thanks

1 |

@alicetaylor-adventures-3581

4 years ago

I am 13 and I was diagnosed at 10yrs old. I had nearly a year of school and couldnā€™t walk and was so so dizzy anyway that was three years ago and now I have symptoms 24/7 I find it hard because some of my friends just think that oh sheā€™s just got migraines whatā€™s the deal. They donā€™t understand how hard and severe it is. My best friends understand though :)

24 |

@omnilism

9 months ago

Try going on walks a lot, do some vestibular physical therapy and then work your way up to running. In the beginning it might trigger it worse during and after the run for a few hours to the rest of the day but in the long term it helps your brain to cope with it better. Later on the immediate symptoms will basically stop and you just feel the long term benefit. You have to keep up with it but it is what has kept me going. Not a cure by any means but helps your brain strengthen to combat some of the symptoms

2 |

@debbieconn100

3 years ago

Thank you for all your information , I have had this illness for 3 yrs , suddenly past 2 months severe vertigo and cluster migraines with it very debilitating, I am disabled due to autoimmune and epilepsy and now this ,I loved hearing your story so glad to hear we are not alone let us pray for each other and ask God to wrap his healing hand around you in a mighty mighty way God bless you ā¤

8 |

@KathyHarkey

1 year ago

50 mg amitriptyline has helped with the depression and anxiety side but I still spend all day feeling out of it. I tell people it's like being high without the fun part of it. Some days are worse than others. I'm exhausted from fighting every day. I work in a school so the loud kids and fluorescent lights and hundreds of them moving around me are awful when I'm in a bad spell. We're trying Botox on Monday. I've read Clonazepam in the lowest dose can help. But we haven't tried that yet. Noise cancelling ear buds help me not going into panic attack mode. I was going to get those glasses, haven't yet. Blue blockers haven't been effective. Thanks for posting this. I've been battling a few years and it makes me feel less crazy when I hear other people's stories. My neurologist keeps trying to treat mine like a regular migraine. He is open to letting me try suggestions I've researched though. Propanol gave me a rash. But you said it nicely and I've said it to my doctor. It feels like my body is firing on all cylinders all day every day. I just want to feel normal again.

2 |

@mariegriffin7966

1 month ago

I seem to be having these symptoms on a daily basis now. Most days Iā€™ll wake up in the morning with this. Thank you for these videos. May you and your family have a wonderful Easter!

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@marijabu

3 years ago

Thank you so much. Very helpful.

1 |

@rachaelthrall1577

4 years ago

Very well explained and very very helpful, thank you!

4 |

@amyshockett1662

4 years ago

Explained so well sure this will help many Matt ! :)

2 |

@AAA-sq2lg

4 years ago

Awww babe. Stay strong x

1 |

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