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A Happy Kid who Doctors Recommended Terminating (Cornelia de Lange Syndrome)
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331,124 Views • Aug 10, 2023 • Click to toggle off description
Ezra is diagnosed with Cornelia de Lange syndrome, which causes a mutation in certain genes. Upon learning of his heart defects, professionals recommended that his parents terminate their pregnancy. Ezra is now a happy 3 year old kid who loves to play with his toys and is learning to walk and sign. Ezra's parents want others to know that he is the best thing to ever happen to them.

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Connect with this Family at www.instagram.com/hotheadedsalvi/
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Views : 331,124
Genre: People & Blogs
Date of upload: Aug 10, 2023 ^^


Rating : 4.88 (273/8,796 LTDR)
RYD date created : 2024-05-11T03:10:20.810372Z
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YouTube Comments - 1,034 Comments

Top Comments of this video!! :3

@andravas

9 months ago

Thank you guys for doing this interview with us! I’d like to clear up a few things in the comments, cuz y’all are jumping to conclusions. I had hopeful doctors who were optimistic about his life, however, the 3 blatantly RUDE doctors really made this harder than it needed to be. We were aware of the facts & made a decision knowing things could go either way and were prepared for both. As you can see, we got extremely lucky with our choice and not only met our baby, but have raised a very happy go lucky almost 4 year old. ANOTHER THING; it was OUR CHOICE. This is OUR STORY. No where did SBSK or my family say that we are against abortions. I am pro-choice and believe abortions are healthcare and any pregnant person deserves access to safe, judgement free care no matter the reason. Thank you for all of you that are being kind. I’m so happy my boy is shining so bright all over the world 💜 be kind, it’s free! Edit to add; healthcare professionals are there to present information, education, and provide options. Not bully a young first time mom into a choice she didn’t want to make for herself. ALSO, doctors and medicine SAVE LIVES! Please stop the extremism.

1.8K |

@katie5940

9 months ago

“Even if he didn’t reach milestones, we would be ok.” I love that! Everyone is worthy, regardless of ability. What great parents!

784 |

@victoria-yy3uo

8 months ago

My brother was born with this syndrome! He’s now almost 40 years old. It’s so cool to see more people like him 🤍 much love to Ezra

355 |

@cheapskatepanic

9 months ago

I adopted a baby with a heart like his (plus ASD, VSD, malformed mitral valve, transposition on the great arteries and coarctation of the aortic arch). He is almost 8 and doing amazing.

261 |

@kitandsons173

9 months ago

He is a beautiful and a gift!! I was told to terminate at 8 months gestation because of as heart condition, cleft lip and palate and possible Downs. Well. I left that practice and went to another. They hooked me up with a Childrens hospital and my unborn baby and I were treated with compassion and love. My son was healthy and just needed surgery. No downs. Happiest baby like yours. He will be a senior this year. God bless your family!

352 |

@christinecaronnabeard1369

9 months ago

You’re all special. Dad, so impressed with your attitude. Mom, you’re beautiful! You’ll both make Ezra proud!!

329 |

@ImQuiteGay

9 months ago

It’s obvious they’re both great parents ❤ I’m glad Ezra got awesome parents and I’m glad they have Ezra.

378 |

@colleenorrick5415

8 months ago

I had a little daughter who had Cornelia de Lange Syndrome. She brought us so much joy. You’re a very lucky family.

90 |

@Juanah92

9 months ago

Aw man these parents are so amazing it made me cry

154 |

@WertyQ543

8 months ago

The person who owns this channel should get a noble Peace Award for how great you are

105 |

@Baba_Wawa

9 months ago

Life is a gift & I’m so happy Ezra’s parents advocated for him! No one is guaranteed tomorrow which makes every day precious!

80 |

@sherryd.3425

9 months ago

Yes. Quality of life for every second you can provide it to him counts. Love counts. Joy counts. If you can see and hear him and he can know he is safe, no one has the right to tell you no. Ezra seems like a lovely boy. You seem like a beautiful family. This minute is what matters. This gift is what matters. Joy to you and yours.

80 |

@lb45878

9 months ago

Ezra has the best smile ever. What a precious little poppet. Mum and dad are amazing. Xx

77 |

@BrittanytheRedPanda

3 months ago

I have a mild case if CDLS and I'm 31 turning 32 this year. I'm 4'7. I also have learning disabilities. I do love seeing little one with the same syndrome as me. Take care guys!

8 |

@priscillasaravia

9 months ago

My baby has CDLS! So glad to see this. They are the sweetest children, the biggest gift.

29 |

@Tinytinytintiny

9 months ago

What a lovely family. I can tell Ezra's parents love him very much. And I'm so proud of his milestones! I wish nothing but the best for them.

73 |

@littlegirllost2654

8 months ago

Dad has an awesome attitude!!! I’m so glad dad is here! Most times the main care falls on the mom. Kudos to you, dad!!! Y’all are all special

14 |

@thejony5

9 months ago

You can just see the hurt in the father’s face when she said they advised her to terminate the pregnancy.

206 |

@kaitlynmarie452

8 months ago

I was born with an extra chromosome and they found it when i was still in the womb. The nurses also told my mom to terminate her pregnancy with me.But my disability is not as severe as other people who have a chromosome disorder i just have a intellectual disability but it isn’t as serious! I just am a slower learner and have to think about what i need to say. Also have ADHD and struggle with depression and anxiety

23 |

@Contessa6363

8 months ago

He is a little boy with a huge personality! He is very happy and it shows! God bless you and your parents Ezra! 😃👍👍🙏🙏🙏♥️❤️

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