Views : 3,779,750
Genre: Science & Technology
Date of upload: Jan 4, 2022 ^^
Rating : 4.951 (1,478/119,376 LTDR)
RYD date created : 2022-04-09T21:54:32.55024Z
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Top Comments of this video!! :3
Man. Hearing about the mother downplaying every symptom, especially during doctor visits, and telling her daughter to just suck it up reminds me of my own experiences with my mother and my Ehlers-Danlos. I too have had symptoms since at least age 6 but I went undiagnosed until I was 23. Medical neglect by a parent is a serious issue.
1.5K |
For those of you questioning why anyone would do something like this I'll give you the answer: chronic illness and pain will make you desperate for relief even if it's just temporary because it's extremely exhausting to live with constant pain, it's all you can think about. You lose enough function you may become desperate enough to try anything. For those dealing with chronic illness and pain, just know that although you feel like a failure, you are one of the strongest people on the planet. It takes great mental and physical strength to push through something so debilitating. I salute you fellow warriors 💜
877 |
I have a friend who's a nurse practitioner. She once told me one of the most powerful diagnostic tools she has is just asking people what they think is wrong and hearing them out. Sometimes they're wildly wrong, but apparently most of the time people have a pretty good idea of what's going on with their bodies.
1.5K |
This poor woman. Having her health issues downplayed by loved ones and doctors is something I can unfortunately sympathize with, and the fact that it led her down this path is heartbreaking. When chronic pain and health issues are as bad as hers, you really will look for any type of relief, and these types of unsafe and unregulated alternative medicine practices are just the thing that people like her can easily fall victim to due to desperation. It's such a shame. My heart goes out to her.
213 |
I had a girlfriend decades ago who was ignored by doctors and ended up with permanent joint damage from Lyme Disease that doctors said was impossible. When they finally tested for it, it was too late to do anything about, and in her 20s she was walking with a cane. I was present when the doctor finally agreed to test for Lyme and it came back positive.
As a young woman, her complaints were routinely dismissed or downplayed by both doctors and nurses, even when other people spoke up on her behalf.
I understand the desperation many people feel. Which makes me even more angry at the charlatans who peddle harmful snake oil to them.
933 |
You're telling my sister's story here. She has been a guinea pig for every RA drug to come out. Thirty five years and she has two artificial knees. She is getting a new shoulder. She is blown up from Prednisone because each drug stops working over a few months time and it is the only thing to relieve pain. She is depressed from all the failures and the older she gets, the more she thinks of ending it all. Only her dog keeps her here.
266 |
I was diagnosed at 55 with SLE, I had it since I was 9yrs old. I went to doctors for 15 years, went through 20+ doctors only to be told IT WAS ALL IN MY HEAD. I was afraid that if I was told it was in my head one more time I would harm the doctor who told me that again. So, I went from 26yrs old to 55yrs old without seeing a doctor. Then I had a flare that almost killed me. I survived, but it took 8 years to recover partly enough to do much of anything and left me with damaged lungs and heart. I am a man, and I was told by doctors it was not possible to get SLE as a man, only women get it. I took upwards of 20 ibuprofen a day just to get by for 25 years, the damage that did is still there. I hope more people, especially doctors, learn about SLE. Thank you for this video, may everyone who needs it see it before it is too late.
33 |
This is a near exact narrative of my life story. I was called a hypochondriac as a child and turns out my immune system has been attacking my muscles, joints, and liver since I was a child. Moral of my story: take it seriously if your child if tell you that they don't feel well, please LISTEN, BELIEVE, AND INVESTIGATE because you are your child's only advocate 💜
95 |
As someone with systemic JIA (the juvenile form of rheumatoid arthritis), this video felt.. very familiar in a way. A lot of my health concerns were shrugged off by my doctors and family for years as well. The place I live is still very much behind on aggressive treatments for JIA/RA so all I got was ibuprofen for years and my joints took a TON of damage (so did some organs) and alternative therapies sound so tempting when your only options are biologics that cost 2k+ per infusion. I really hope KJ got treatment options she could afford after this.
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@chubbyemu
2 years ago
I'd like some H2O too 😌😌😏😏😏😏😏😏😏😏😏😏
9.5K |