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921 Views • May 25, 2023 • Click to toggle off description
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3:33 Glimpses Documentary
01:00:33 Outro
Views : 921
Genre: Film & Animation
Date of upload: May 25, 2023 ^^
Rating : 5 (0/42 LTDR)
RYD date created : 2023-07-12T10:34:47.921672Z
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YouTube Comments - 37 Comments
Top Comments of this video!! :3
Thank you for making this so others can see what a beastly horrific disease this is. I’m still not ok after losing the love of my life to this.
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A huge thank you for making more MSA movies. This was hard to watch even for myself who is suffering from Multiple System Atrophy and have a 2 documentaries about myself and MSA. If you'd like check out Fighting MSA Austin Crawford's Story or Driven to Help. Thank You again for making the invisible, VISIBLE.
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Thank you for making this! Visibility is our greatest strength when dealing with this beast of a disease. I lost my mom in 2021, 9 months after her official diagnosis. Sending love from the US!
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As a fellow MSA warrior- I say thank you 🙏
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4 weeks ago I lost my partner to Msa . He was 71 and suffered 4 plus years .
I miss him with a pain that can never be described .
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Watching it was an extraordinary experience and very moving. I'm sure Gregory would love the film as well. What made it even more valuable is that you literally gave him a voice here (and a really good one as well). It's amazing and eye-opening that his mind is still so sharp while the rest of his body is of no use. You can think the deepest thoughts and ideas but you cannot move your hand. Usually it's the opposite in life. Most people are very able to do anything physically but they don't use much of their brain. This narration is so important to show us that this is not just a body handled by nurses (as many people would probably see it without the Gregory's voice) but there is a bright human being trapped inside of it. And his family was so loving and dedicated. I imagine for most of the people it would be too much and they would arrange for a family member to be taken to some kind of a care home to avoid that burden but Gregory's family is amazing. I cannot even imagine how their lives were changed and how much they had to sacrifice. Such an important message at the end from Gregory. Great work
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What a truly incredible and humbling documentary. Your family is very lucky to have such a talented filmmaker like yourself to make this for them and tell their story.
And I'm sure being able to watch this over the years will help Rita come to terms with such a difficult period of her life.
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My husband has MSA type C…..your documentary has show me the strength of this family . I don’t know how long it is gonna be for my beloved husband of the last 33 years, but I hope i will be as courageous as Kate…my name is Katy and I will face this as good and brave as I can.
My sympathies to this family
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I have just got myself to watch this film. I knew it was going to be hard but It's just heart-wrenching. Thank you for giving your uncle Gregory the voice that was taken from him. Thanks to uncle Gregory for this message for everyone, for having the courage and selflessness to release it into the world. Through this happening of circumstances including that his nephew is a filmmaker this message was born. Raising the awareness is extremely important. But it is also important for those who will not have anything related to MSA in their lives - a reminder to be thankful to be alive and well, to be here in this very moment with their loved ones. This doesn't help my existential dread but increases my appreciation for the life I have tenfold.
Thank you, Guy, best of everything to you and you family, cherish the warmest memories you all have!
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Very much felt like our story too and touched our hearts. The same journey and similar timeline for us too. Felt like you have given voice to many silent MSA sufferers all over the world. This documentary will bring the silent and lonely MSA stories out of darkness to be shared and understood by many. Thank you
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Fantastic docu, a real eye opener of a disease I didn't even know existed until I watched this.
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Thank you so much for sharing your thoughts on this film. I saw the screening last year during the defeat MSA annual conference and was moved by your poignant story telling. Thank you for sharing Gregory's story; your uncle was a remarkable, intelligent man, gone too soon. My husband was diagnosed with MSA last year and I think it's important that we all share our stories.
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Thank you so much for spreading awareness and letting us have a glimpse at your uncle Gregory’s live. MultiSystemAtrophy is a horrific and cruel disease for one suffering and their loved once.
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Not sure if I done it wrong, but I watched this video then going to watch the film now. You provided precious knowledge about how to make it by yourself as a one-man-crew indie filmmaker. Thanks a lot for all your efforts.
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I see multiple nutrient deficiencies, like in cattle, over a prolongued time.
Diet, diet, diet and what you eat and do not eat.
Could it be?
My gut and instinct tells me yes.
Very sad.
Look also up>youtube
Could it be B12?
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@christineibbotson1588
2 weeks ago
My mother had MSA and this is such a cruel disease. So very brave of Gregory and his loved ones to share his journey. My thoughts to all who are suffering from this and their families.
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