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18,691 Views • Apr 27, 2019 • Click to toggle off description
I'd love to hear about your vision story! If you make a video, be sure to put #visionstory in the title.
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Views : 18,691
Genre: People & Blogs
Date of upload: Apr 27, 2019 ^^
Rating : 4.958 (10/948 LTDR)
RYD date created : 2022-01-24T18:08:19.320759Z
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YouTube Comments - 193 Comments
Top Comments of this video!! :3
I hope we get superadvancement in bionic eye so you can get better vision than 20/20.
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Thanks so much for your video. My son was diagnosed with this condition during the 3rd grade, I felt guilty and devastated. Now my son is 27 graduating in this month with his bachelors degree and will start as a teacher next year teaching children with vision problems. Thanks you!!!
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Thanks Sam. I also have Stargardts. I was an exception to the normal course as I had 20/20 vision until I was in my mid 60's. I was able to practice law in a courtroom for years. Now I have all the characteristic limitations. Reading print and seeing facial features of people are the most significant. I use computer software called ZoomText and all sorts of adaptive equipment to allow me to keep doing office work at 73. I consider myself extremely fortunate.
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I WENT THROUGH THE SAME THINGS! BEING AS CLOSE AS POSSIBLE TO THE BLACK BOARD WAS PART OF MY LIFE.
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I thought you had stargardts. I have the same and you seened to act in the ways I do. It sucks but you certainly have made the best of it.
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We tend to take eyesight for granted until we have problems. I have had 5 retina detachments, I have scleral buckles on both eyes. Cataract surgery in both eyes & multiple laser and cryotherapy's.I have developed advanced glaucoma in both eyes from all the trauma from the surgery's.I think that's it but I'm starting to lose track, Oh yea I have diplopia too. LOL I can actually see pretty well out of one eye considering, I have a fantastic retina specialist he saved my vision many times! I'm having optic nerve trouble now, my glaucoma is starting to win the battle just in the last few months. I'm afraid I'm headed for the dark room soon. I'm probably one detachment away from it anyways. But I have prepaired myself mentally for this final chapter in my life, even tho it's hard not to be a little afraid of whats to come. I find your content very informative & interesting. Thanks for posting sir.
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Starguardian! Thats awesome! 😎 Great video!
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I love your positivity! God bless you!
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Nice, thanks for sharing Sam
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Bro I just found this video on your channel and let me tell you I totally understand what you went through my friend God bless you and your family play
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Thanks for sharing your story Sam.
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All the very best Thank you very much 🤗 for bringing us this content it’s very educational for me
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Thanks for sharing your story Sam. I will be interested to hear more about the genetic testing that you had done. I look forward to hearing more about that and where genetic testing can be done. I appreciate your channel and I've learned a great deal from your videos.
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Sam thanks for sharing. I can relate as I was born with high myopia which then progressed to myopic macular degeneration about 18 years ago. Your YouTube videos are undoubtedly the best videos on YouTube for our community. Keep up the good work.
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thanks for that Sam, I enjoyed watching/;listening to your story. I have learned so much from your channel in my short vision loss Journey (Just since June 2018 - when I down and fed up about it, I( come on YouTube and watch channels like and including yours..I may even do my own vid haha
10 |
Hi from Turkey Sam! You're really great person and I'd like to meet you. My brother got Stargardt disease but he isn't as strong as you. So I'm proud of you. Always be strong and positive to life 💕
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Inspiring!
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Thanks for sharing Sam. I have RP (retinitis pigmentosa). Keep up the awesome job you do.
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Thank you Sam for your video(s) I came across today. You are so amazing with such a great attitude. I was glad to hear about the Orcam device, DNA testing, other helps for "low vision". It seems the vision field continues to expand and grow with new conditions, treatments and prognosis. Your an inspiration. God bless you! I've subscribed to your channel and look forward to your further posts.
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@jeannafw
8 months ago
Your story was so familiar to me. I was diagnosed with Stargardt's at 10 and remember the diagnostic tests, the large print textbooks, and always sitting on the front row, sometimes in a desk pushed closer to the board. I also had the experience of a retinal specialist (the same specialist who diagnosed me 40 years earlier) telling me that the progress of the disease didn't look like Stargardt's, so perhaps I was misdiagnosed as a child. As in your situation, a genetic test confirmed it was Stargardt's. Thank you for this. I know you posted it some time ago but I just heard it today on your podcast.
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