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98,652 Views • Apr 6, 2019 • Click to toggle off description
In this video you'll learn:
- What led to my diagnosis
- What I learned about hemochromatosis
- How I adjusted my lifestyle to live with hemochromatosis
- How my treatment and recovery is going so far
- Weekly phlebotomies anyone?
All this as seen through the eyes of an American living in Japan.
Views : 98,652
Genre: Howto & Style
Date of upload: Apr 6, 2019 ^^
Rating : 4.927 (56/3,016 LTDR)
RYD date created : 2022-01-20T06:02:28.154842Z
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YouTube Comments - 617 Comments
Top Comments of this video!! :3
Let me tell you my story. My ferritin was1700 in 12/2020 Doc and I blamed on supplement. march 2022 ferritin was 1700 ,again we blamed on red meat. in a mean time I experience gout. 3/2023 3month ago my blood work was so bad, ferritin 920 ALT and AST was like 200 Thyroid hormone was zero, worst of all HgA1c jumped to 6.9 .My oncologist started phlebotomy 250ml/month(concerning my low WBC and Low Neutrophil count) I had total 3 phlebotomy total blood removal 250 X 3 = 750ml. I was so desperate to become well, I started Carnivore diet + intermittent fasting on 3/22/23 . 9 weeks later I had my blood tests. ALT.AST normal,Thyroid normal, ferritin was 73, HgA1C=5.1 also lost 20lbs without trying too hard, lost 6 inches on my waist. (I do not have Hemochromatosis gene) The result was pure luck, it was not anyone's recommendation other than Youtube KenBerryMD. I am so happy to have found the way to regain my health.Doc said three phlebotomy did not lower my ferritin level. Something was causing inflammation and the cause was eliminated. In my case the cause of inflammation was Carbohydrate!
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20 years ago my ferritin level was over 3000. It was off the scale. Still here, albeit with numerous ongoing health issues and operations. 75 yrs old now. The fifteen first years were the worst. Pain, opioids, chronic fatigue. I made it through and in my bonus life. I don't have high expectations - not able to do much, but I have someone to love, something to do and something to hope for, so I live thankfully. I am content.
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Great video!! Thanks for doing this. Yes lets keep raising awareness!
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Thank you for your video, i just discovered i have it, my iron is high for almost 10 years, my Dr never told me about it until I asked to be tested, hope u feel better since is almost 3 years u made this video!🙏
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I have hemochromatosis & have been ignoring it, after seeing your video im going to the doctors again, thanks for sharing this. Godspeed
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Thank you for taking the time to make this video, much appreciated.
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Thank you for this video and sharing your experience. I guarantee you are saving lives. I wish you all the best in health and happiness.
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Thank you for sharing your story. I was recently diagnosed with Hereditary Hemochromatosis and it has been an interesting process going through treatment.
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This is an amazing testimony! Thank you
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Thank you Rich for sharing your story. It has helped me with understanding my lectures on Iron overload and Hemochromatosis. I hope to help persons with this condition in the future!
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Thank you for sharing your experience, very helpful information. Wish you all the best.
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Thank you for sharing this information with us. ♥️✋
Much love and wishes for good health
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Thanks, Rich! This video is very informative. Yesterday (3-4-24), I had the result of my hemachromatosis test at 794 from the previous 791 two months ago. I wish you have have an updated video on the same topic. Thanks, and God Bless!
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Thanks! I have a very similar story, but I got a genetic test that confirmed I have the homozygous C282Y mutation that causes classic heredity hemochromatosis. In other words, the iron overload mutation came from both of my parents. In 1996, archaeologists discovered the genetic source of iron overload. Bronze Age Viking skulls found in Scotland had intact DNA with the C282Y mutation that causes iron overload.
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Thank you so much for sharing your story, it’s been very helpful God bless you.
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Thank you! I enjoyed watching your video (actually had several good laughs). A family member has hereditary hemochromatosis. I tested myself, and I do not have it, but acknowledge that I may be a carrier. So awareness is needed!
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Thank you so much! Very helpful information and i do hope you’re blessed with good health! Love!
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Awesome man, I appreciate you, and you explained very well, may Allah protect us from all kinds of deceases
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Thank you so much for sharing your story, have been feeling very fatigued lately even though I lead a healthy, actuve lifestyle. Blood tests showed my iron levels are way above the acceptable levels, my journey begins with more tests and bloodletting in the new year. Had no idea high iron levels were of concern until recently, great to see people trying to get the message across.
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@iride4425
8 months ago
High ferritin can be also false positive, meaning it doesn't mean you really have an iron overload, but be a marker for inflammation.
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