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Views : 34,333
Genre: People & Blogs
License: Standard YouTube License
Uploaded At Apr 21, 2024 ^^
warning: returnyoutubedislikes may not be accurate, this is just an estiment ehe :3
Rating : 4.995 (3/2,437 LTDR)
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User score: 99.82- Masterpiece Video
RYD date created : 2024-05-15T02:05:50.239435Z
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Top Comments of this video!! :3
As a patient I find it so annoying when people say doctor's appointments are supposed to be about "one thing only". Like sometimes I have lots of symptoms that I think seem random and unconnected and feel like seperate problems but if I actually communicate them ALL to my doctor, it might turn out to fit together under one diagnosis that I wouldn't know about!
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My last surgery was in 2019. My body was opened with two incisions in my lower back region. Then they opened up my lower abdomen also. As they were flipping me over, back and forth, the IV in my arm âfell outâ and my arterial line (the IV they put in my neck after anesthesia) âblew.â As I awoke, they were still operating. They didnât know that they had destroyed both of my IV lines, and I was no longer getting any anesthesia at all. I awoke to the sound of a voice screaming, âOh, Jesus help me. Oh, Jesus save me.â Iâm not sure how long it took, but at some point, I realized that was my own voice I was hearing, and I was awake, and they were trying to force the mask back onto my face, but it was just too late. I was wide awake and I was not okay. They finally had to call my family to console me. Whatâs the best part of story? When I talked to my surgeon about it, he completely gaslit me. He said he was not in the operating suite when that happened, and he knew nothing about it. He sent me to Pain Psychology, and they did not even document in those records, why I was there⌠Because the hospital allowed me to wake up during a life threatening surgery. To this day, they will not acknowledge me. #UCSD #LaJolla #CA #JacobsMedicalCenter
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Iâve been sick since birth and my doctors growing up taught me very well to advocate for myself. My current dr office asks me (when I make an appointment online) what it is for and I say âeverythingâ but I follow it up with a MyChart message with a list of all the points Iâm bringing up during the appointment. Doctor rolls her eyes and says â oh youâre one of thoseâ my response âwell yes maâam you were running late so it gave me more time to think of things I need to talk about todayâ
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I've had this experience so many times. Thank you for talking about this. The state of healthcare in the US is truly broken. I am legally disabled, I deal with multiple chronic illnesses and autoimmune things that cause pain, make me more prone to accidents, and can rapidly fluctuate in severity. I need an entire care team of doctors with various specialists and trying to get all of them on the same page is a nightmare. I just need them to listen to me .
I make a list and print it out because I do have ADHD and I don't want to forget to ask for something like a referral or a medication refill and it gets me with so much hate. Like yeah, I'm here to manage my conditions and I wrote down what I have noticed lately and want to discuss? They act like I've asked them to read my dissertation.
God forbid I need a form filled out.
And yeah, the appointment is supposed to be 15 mins (which is too short anyway), it's really more like 5 with the doctor and they're always running late and act like it's my fault somehow. I get a lot of "let's save that for next time since we don't have time for it today" when I already probably waited a minimum of 3-4 months for the appointment I'm already at
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PLEASE do some videos that show how to advocate for yourself at the doctor's office. I have been chronically ill since I was 7 years old, that's over 35 years and have been gaslit and neglected the entire time. I've been in multiple support groups online and in real life and all of those chronically ill people have the same problem. Finally we're seeing some people on the professional side start to speak about it and I appreciate that so much but all they ever say is that it's a problem and that we need to advocate for ourselves but we're already trying so hard to advocate for ourselves and the harder you try, the more likely they are to red flag you, gaslight you more, neglect you more... it makes the whole situation worse and it is psychologically devastating to go through as the patient. It's gotten so bad that I can't go to the doctor anymore. I can't go. I can't do it. I really can't take it anymore. I have cptsd from the rest of my life and having these professionals who are the only people that I can go to for help treat me like that... in a way, like my abusers... I can't handle it anymore.
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If only they were this verbally up front about their refusal to treat us properly. They don't make it obvious and if you were to suddenly bring their dismissiveness up it would just be mad awkward because let's admit it, they are professionals at this... and their gaslighting skills? Top tier. Now I just fire doctors that make me anxious and make me feel as though I'm being subtly bullied. If I have to advocate this hard every step of the way, it's going to be too much of a fight. If they're not willing to collaborate, fire them!!!ÂĄ
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Can I point out how amazing it is to see someone that specialized in trauma!! Iâve had the hardest time finding someone that specializes in trauma? I went through a traumatic incident March 2023 and still working through it with 4th therapist! The first counselor used me so she could get paid by victims advocate (and still billed my insurance on top of it) she was by far under qualified and literally asked me one time why I was crying after finally reaching my breaking point. She asked me if I was suicidal and if I wasnât âtelling her everythingâ again because she didnât understand why I was crying. My victimizer was getting away with the charges which prompted my break down, the second wasnât near as bad but felt like they wanted to schedule me for to profit off of my experience and I was weary from the first, the third was so sweet and tried to help but admitted she wasnât qualified, Iâm now on my fourth and so far itâs going much better except so much damage has been done while I struggled through the first year and still going through civil litigation and just staring with what I hope is beneficial therapy! My trauma isnât âcommonâ as it involves my prior boss stalking and filming me at work (including the bathroom). They donât have support groups for this type of situation and when Iâve tried to speak up about how he groomed me as well Iâve been told only children can be groomed and âhow dare I take away from actual victimsâŚ.childrenâ. Obviously by this rant Iâm still struggling and want to feel heard so if anyone made it through this thank you! Also I appreciate this type of content and you taking the time to address common issues that are real and truly issues đđťđ
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I went for my annual physical. A few days earlier, I had blood drawn for a variety of tests that were included in my physical. Turns out one of the tests revealed I had hypothyroidism, so a prescription for a low dose of levothyroxin was ordered. A week later, I was billed for a physical (covered by my insurance) and then billed $268 for time to discuss âadditional illnessâ. Discussion? I didnât even feel any symptoms, let alone bring up the subject!! Insurance covers 1/2 of this âadditional illnessâ charge. Next visit, Iâm going to be VERY clear that any thyroid monitoring is now a part of my annual exam, because the prescription renewal is dependent upon a yearly exam with blood test.
Iâm also tired of the incessant questions regarding my mental health: Are you depressed, sad, anxious, nervous, sad, trouble controlling your emotions, frightened or threatened by someone in your home, difficulty facing the day, sleepless nights? If I answer anything âmaybe or yesâ, then it becomes a 10 minute mental health visit, and another $268 charge, again only 1/2 covered by insurance.
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I had this happen, and after the same dr. acted like this repeatedly -I fired him , yep people think you can't fire dr especially on low income and crappy ins. But ultimately they work for you , I had to go to A clinic for awhile but ultimately you are allowed to get other opinions at no cost. Btw My Neurology team taught me to bring a list so I didn't forget ...
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@Cattomeowo
7 months ago
GOOD doctors will LOVE your list. They will APPRECIATE your list. Theyâll say, glad patient has come with their thoughts put together and organized, so this will be quick.
Update: had a new primary care doctor appt yesterday and it made me think of this comment.
I think reframing your list at the start of your appointment may make a difference sometimes. I use the intro:
âdr.( ), nice to meet you! So I know how valuable your time is, and since I have multiple health issues to talk about today, I put them into a list, if you want to run through that together quick?â (even if it wonât be that quick)
Iâd say it works with over half the docs Iâve seen. The doctor I saw yesterday definitely was receptive to this!
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