@jedheart8059

8 months ago

Oh, I had 6 botox unjection into my cervical spine in 2009. After, i could not breathe. I had a reaction and my respiratory muscles from neck to chest were so weak, I used my old CPAP during the days and nughts for 6 months.I laid on floor to move my neck with my hands so i could maintain movement in my spine. My VA doctor at that time placed a flag on botox to never have it again. I did not get allergy tested until 201-2. My Histime levels were elevated in the 100s. I have anaphylaxis history, not typical but a few times on IV at various times in my lifetime from teen in 80s plus a few. I have had to have asthma medications while intubated during surgeries, endoscopy and colonoscopies. I have been putting off a thumb surgery because my orthodontist surgeon daid he would only do a syrgey if I am awake because I had a stressful ke alert and hypercapnia post op gallbladder surgery a year ago. I was unconscious, doctors could kot wake me usung "noxious measures" whatever that is. When woke I had "course tremors", could not walk or use my hands for three days while im hospital. Could not use a walker to go to bathroom room as legs would collapse. A friend has suggested I may have Mast Cell Activation Syndrome. I dont have diagnosis but I have Omizilmab injections monthly for last 3-4+ years. I do have allergies but my last ENT did an nasal scope and I got to see how actually clear my sinuses are. He said I both allergies and a hypermotor nasal reaction. I cannot recall what he called it. I recognize in this video what he meant now. They, throbbing events, do release, dump a load if mucus when my sinuses dtart throbbing. I feel the throbbing, then a mouthful, full mouthful of mycus drip down my throat, choking me. When I sneeze, I sneeze non-stop 10-20 times. I have counted them. My allergist recently prescribed a a Mast Cell Mediator spray. I already had the prescription in eye drops for my eye allergies. I was given anti-lueketrine medication soon after my first allergy test. i also had a result of actual gluten allergy on that VA allergy test. I get migraines eating Melons, any melons. I live melons but have to carry an allergy card to give to restraints to warm about any melon anything in my food. So, I am starting to think my friend might be right - Maybe Mast Cell Activation Syndrome. Now, I can see the connection with Migraine Symptomology too.

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