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60,382 Views ā€¢ Apr 17, 2024 ā€¢ Click to toggle off description
Things (some) Autistic People Do PT 11 #painscale #latediagnosedautism #audhd #momonthespectrum
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Views : 60,382
Genre: People & Blogs
Date of upload: Apr 17, 2024 ^^


Rating : 4.995 (9/7,428 LTDR)

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User score: 99.82- Overwhelmingly Positive

RYD date created : 2024-05-29T02:23:15.614108Z
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YouTube Comments - 660 Comments

Top Comments of this video!! :3

@spookyplaguedoctor5714

2 months ago

Pain is also very subjective, it's hard to quantify when your 9 might be someone else's 3.

616 |

@fairy_gvts

1 month ago

I really like the veterans pain scale (also called DVPRS) for this reason. It gives definitions for each number. Its especially helpful with chronic pain, but also useful for autistic ppl. Heres the scale in case anyone is interested: 0 = No pain 1 = Hardly noticeable pain 2 = Noticeable pain, but does not interfere with activities 3 = Somewhat distracting pain 4 = Distracting pain, but does not affect normal activities 5 = Pain interrupts some activities 6 = Hard to ignore pain, avoidance of daily activities 7 = Pain is the main focus of attention, prevents daily activities 8 = Awful pain, difficult to do anything 9 = Unbearable pain, cannot do anything 10 = As bad as pain can be, nothing else matters

355 |

@lapislazulis2378

1 month ago

Also: when you're being so used to pain that you don't know what it feels like to be at 1 anymore, or that your usual pain becomes the "new 1"

262 |

@annaphallactic

1 month ago

Many of us also have garbage interoception and don't even realize that pain is happening in our bodies in any given moment.

135 |

@lisa_wistfulone7957

1 month ago

YES!!! Not only do I try to scale my entire life and all possible pain I might ever experience, but I also try to assess and quantify how medical staff will view my response! Will they think Iā€™m a whiny hypochondriac because they think my number is too high? Will they minimize my needs because my number is too low? I internalize their mistakes as if itā€™s something I could control if I just guess the ā€œrightā€ numberā€¦šŸ˜žšŸ˜­

108 |

@sasagreen257

1 month ago

I actually looked up pain scales online at one point because I couldn't quite wrap my head around it myself. I found one that described how overwhelmed the pain made you feel, like what can or can't I still do with that pain, how much of my thinking is occupied by tha pain, etc. Made it actually much easier to put a number to it.

88 |

@user-no2mz9hl4f

2 months ago

YES!! I really relate to feeling like you have to do research and categorise all pain to answer what should be a simple question.

68 |

@beckyd5542

1 month ago

"This requires research! I need to call my mom." šŸ¤£šŸ¤£šŸ¤£ I love it!

21 |

@jamiepattison

1 month ago

Every time!! I always understate because I feel like they'll tell me I'm lying or "wrong" if I say a higher number.

14 |

@fifinoir

1 month ago

So relatable. For most things that require me to rate things, not just pain. My emotions obviously being the hardest but also restaurant or film reviews. How much I liked a meal. My opinion on anything that doesnā€™t have either a simple yes or no answer, requires research to answer.

10 |

@David-ev3un

1 month ago

The problem is the question. Your questions about the question are valid

16 |

@Danni317

1 month ago

I often explain the pain instead of answering the 1 to 10 question. I'm also really bad at seeking medical assistance unless I really need it .

4 |

@kimbunt3976

1 month ago

ā€˜I need to call my momā€™ thatā€™s soooo relatable šŸ™ˆ

20 |

@VirginiaSunrise11

1 month ago

Yes! My relationship with pain is weird and messed with my birth experiences. Like I had to figure out how to express what was going on in away to get the staff to believe me. Like I was in preterm labor with my last child and I had to convince them something was wrong because to them I seemed way too calm and controlled. Until they put me on the monitor and then they started to PANIC. And all this with them having the knowledge that I had a history or premature babies. šŸ˜¢

16 |

@wesley3300

1 month ago

One of the things I realized a couple days ago was how itā€™s always been really difficult for me to describe ā€œthe painā€ or ā€œthe problemā€ when things seems to pop up. When it comes to actual, physical pain, itā€™s hard to pin down sometimes because even though Iā€™m trying to address something specific, I canā€™t seem to get away from the fact that the pain is connected to so many other aspects of my being (let alone my body). Sometimes that means that, even though I know what I want a doctor or something to look at, my attempts to explain can be easily derailed as I try to ā€œget us there,ā€ explaining how my issue seems to come from some other, seemingly related thing. Basically, when Iā€™m always struggling to fully process a barrage of tiny stimuli inside and outside of my body, itā€™s really difficult to mentally zone in on a particular thing when trying to communicate.

5 |

@matthewcritchley5458

2 months ago

For a while I thought it didnā€™t really matter because they were just going to use it for self reference, to see if things have improved or not (because how could a subjective pain scale be that useful beyond that?) but then I was in the hospital recovering from surgery and they wouldnā€™t give me more pain meds because I hadnā€™t said a high enough number. Like, what the heck? I am telling them I am in enough pain that I require the medication, just because that is a 6 on my scale, but most people would call that an 8, they didnā€™t renew meds!

14 |

@EnbyTransMochi3628

1 month ago

I always put the number on the pain scale possibly lower than it should be because I'm used to pain (self inflicted) but 100% agreed. I do the exact same thing šŸ˜… (I'm autistic with moderate support needs)

12 |

@thequietlife1152

1 month ago

ā€œThis requires research!ā€ šŸ˜‚šŸ˜‚šŸ˜‚ Yes. I also have to consider that in order to say it hurts, it has to get to a level ā€œother peopleā€ begin to clue in that it hurts and go from there.

4 |

@sierrasicard4593

1 month ago

I like the ones that have the faces and examples with each number, it helps me Guage where my pain falls. Like "it really hurts but I can still think and talk" or "I'm crying now and it hurts so bad I can't talk"

3 |

@lesliedavis4366

1 month ago

In the army, had to answer 7/8 for them to actually pay attention. I may have thought it was more of a 3- a constant annoyance, but to be taken seriously and receive adequate care it had to be over a 6. I just kept thinking- so do I have a high pain tolerance? Or am I just a hypochondriac? Self advocacy is hard

5 |

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