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107,972 Views • Jan 16, 2024 • Click to toggle off description
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⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and and orthostatic hypotension along with some mental health disorders.
2. How old are you?
‣ 18
3. What is FND? 🧠
fndhope.org/fnd-guide/
4. What is Tourette's?
www.cdc.gov/ncbddd/tourette/f...
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My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am an ambulatory wheelchair user showing my life using mobility aids and how chronic illness symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my l
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Views : 107,972
Genre: People & Blogs
Date of upload: Jan 16, 2024 ^^


Rating : 4.914 (208/9,432 LTDR)

97.84% of the users lieked the video!!
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RYD date created : 2024-05-24T18:01:01.921841Z
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YouTube Comments - 280 Comments

Top Comments of this video!! :3

@pnut9995

5 months ago

My nephew was recently diagnosed with Tourrettes, and because of you, I am able to understand the Real Life affects and allows me to try to be a better support for my swert nephew

220 |

@jyeonsx

5 months ago

i have tics, recognized by my doctors. we believe they are anxiety tics because when im anxious they explode, I've been dealing with it since 2021 it can be funny sometimes, some people find it cute like my mom and boyfriend and thats quite nice, because most times it is really embarrassing and tiring. no, I do not think its quirky and cute to be yelling nonsense stuff and gross words and attract the attention of strangers. people don't praise us who have tics, they actually get scared. i miss my life before when I could choose to stay quiet and BE quiet. update: im totally sure my tic things are emotional thank godddd. i have very few now. i started eating better and exercising, been learning to be more disciplined and i dealed with lot of situations that were giving me so much anxiety. the unvoluntary jerking still happens but im much better and less vocal.

56 |

@Flickit100

5 months ago

My Lord lady, you are so intelligent. And stunningly beautiful with a wonderful personality.

181 |

@crazycrocodile01

5 months ago

Love this - you know you are an og when you think this is old b/c the tapestry in the background

70 |

@millygd955

5 months ago

I technically meet the diagnostic criteria since I have multiple movement and vocal tics, and it developed before I was 18. Thing is I started getting noticeable tics when I was 17 and I've done a bunch of research and that is rare. And yes I'm 19 now so its been longer than a year. Idk about getting a diagnosis. I want one but I feel like doctors will just brush it off as my autism or anxiety

28 |

@Zidrazia

5 months ago

I developed tics late, but I meet all the criteria for Tourette's except the age. (We don't know if I had any tics before that were so infrequent they went unnoticed.) I'm diagnosed with functional tics. I pretty much present exactly the same way as someone with Tourette's, and because a lot of people don't actually know about other tic disorders, if I have to explain it I sometimes just say it's "similar to Tourette's". According to my neurologist, there's a bit of an epidemic of young AFAB people with ADHD who are suddenly developing functional tics.

10 |

@E_melxa

4 months ago

I have a few tics; tongue clicking, squinting, nose scrunching, and smiling. I don't know if by the time I get an appointment if I'll havw developed snt more or if I have met the criteria, but you telling us this criteria makes me feel more prepared for when that appointment comes, thank you.

6 |

@karencowan2263

5 months ago

The meow is so damn darling!❤❤

11 |

@liamr3362

5 months ago

Something that I worry about is that I'm 19 almost 20 and never once brought up tics during a doctor's visit. So I'm worried that a doctor would not believe me. A little context, I have been having both motor and vocal tics for a while. My tics didn't start become worse or noticeable until I was 15. I had a few tics for example I had a quiet high pitch squeak tic that would happen every few days. This did not affect me very much hence why I never brought it up, because it wasn't something I thought I should bring up. But my tics started getting worse and worse then a few months later covid happened so I didn't visit any doctors (I also normally only saw a doctor every 2-3 year). Now I do not have health insurance atm (I'm american ;-;). So idk what to do since I don't have any notes from a doctor nor "proof" that I've been having tics for years. I don't want to go to the doctors (and spend a shit ton of money) just for them to not believe me or think I'm doing it for attention :/

16 |

@sophylophy9332

5 months ago

I think I have Tourretes, but I'm still waiting for the full year. Hopefully sometime this year I can get a diagnosis, because my tics started sometime in September. For now though, I'm just learning how to deal with tics on a daily basis. Love to you Zara! 💜

91 |

@SacredSecret

5 months ago

Interesting and informative video. Thank you for sharing.

18 |

@avinandanbhadra1274

4 months ago

GOD BLESS YOU ZARA JI GET WELL SOON I WILL PRAY FOR YOU

2 |

@user-so8vw1vc4y

5 months ago

I love your videos ❤

19 |

@wiggle871

5 months ago

Thank you perfect timing as just started ticing and I think it's neurological but others think otherwise

6 |

@EllaCurtis-ny9vn

5 months ago

I have tics and i think its because of my anxiety and when I do a tic some people dont know what they are and sometimes they give me a weird look and sometimes i miss when i didnt have tics

4 |

@animempire638

2 months ago

I started suffering my ticks when I was in grade school. Pepole said I was faking them. I was super stressed out and quite depress. I finally spoke to my home doctor, and she ended up getting me diagnosed. All of my ticks are physical, and just recently, i was speaking with someone about them. And they said that ticks are always repeated movements. And I was about to disagree when it occurred to me that they are. I just have so many that they feel random. My head might shake, the inside of my stomach might convulse, my arm might go flying, my legs might twitch. Always the same places over and over again wherever they might be. I found it quite interesting how many people told me I had Tourettes syndrome when I didn't.

2 |

@Dragszire22

4 months ago

I have loads of diffrent tics when im nervous, and sometimes diffrent tics come and go.

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@MickeyMouse11-ls1ef

3 months ago

I have ADHD tics, for me they are only motor unless a gasp or grunt counts as verbal tho I personally don’t include since they are not that often, I usually tic by my head shoving to the side or forcing it up which hurts, sometimes it happens to my hands which tenses any other thing doesn’t happen too often. I haven’t told people at school about my tics because they aren’t to frequent (on certain days) but I have gotten weird looks before😅

2 |

@Stormthewolf13

3 months ago

I have anxiety caused tics and they happen a lot from when I am tired.They also happen a lot more when I get excited it does also combine with my adhd but I make more audible tics when I get excited and more motorized tic with head twitch and all that when I get tired or stressed

1 |

@That_weirdo_Nemo-

5 months ago

I’ve had motor and vocal tics for a year now but I absolutely don’t have them consistently so idk what to do

6 |

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