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Date : 1719576818985 - unknown on Apple WebKit
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714,232 Views • Mar 5, 2024 • Click to toggle off description
#chronicillness #disabled #disability #neurodivergent #wheelchairlife
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⭐️ instagram ▹ www.instagram.com/zara.bethx/
⭐️ all socials ▹ portaly.cc/zarabeth
⭐️ join my discord server ▹ discord.gg/zarabeth
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
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⭐️ become a channel member ▹ youtube.com/@zara_beth/join
⭐️ stream my music ▹ distrokid.com/hyperfollow/zarabeth/shes-mine
⭐️ where i get my music ▹ app.hellothematic.com/?via=zarabeth
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✰ FAQs ✰
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and orthostatic hypotension along with being neurodivergent!
2. How old are you?
‣ 18
3. What is FND? 🧠
‣ fndhope.org/fnd-guide/
4. What is Tourette's?
‣ www.cdc.gov/ncbddd/tourette/f...
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
⭐️ YouTube Setup + Equipment ▹ amzn.to/42QmxCN
⭐️ Recommended Products ▹ amzn.to/41wXJPX
(not sponsored! but these are af links so i make a cut from any purchases💕)
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✰ About Me ✰
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person. I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accommodations I have to help my daily life. I am an ambulatory wheelchair user showing my life using mobility aids and how chronic illness symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my l
Views : 714,232
Genre: People & Blogs
Date of upload: Mar 5, 2024 ^^
Rating : 4.937 (780/48,463 LTDR)
98.42% of the users lieked the video!!
1.58% of the users dislieked the video!!
User score: 97.63- Overwhelmingly Positive
RYD date created : 2024-06-10T18:32:12.952159Z
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YouTube Comments - 276 Comments
Top Comments of this video!! :3
The custom one looks so comfortable and helpful!
825 |
I'm happy you could get it.
But sad that you had to do it all alone.
Because it's my job in Germany to deliver wealchairs and measure the optimal dimensions of them.
And then you only need to pay 10€ for it, because our free helfcare pays the rest.
80 |
As a young person with FND and other neuro disorders that make me unable to walk, it’s really helpful to see people like you post about having FND. It gives me hope that my life can be manageable one day.
26 |
super hapy for you zara and the pink bits on the foot rest bars are super cute hope you are having a nice day
354 |
Having a mobility aid like this can make a world of difference 👍🏻 I’ve got ME/CFS & some of my fellow Spoonies use wheelchairs. I don’t at the moment but might need to do so in the future.
It’s encouraging to see how helpful a wheelchair can be. Wheelchair use should never carry a stigma, it’s just another mode of transport!
157 |
Zara you inspire me. I have spent some time in a chair myself and have other health issues the last 2 years. I am struggling. And all you do lefts me up, and plus your adorable and I love your voice.
9 |
I love the fact even wheelchairs are customisable! Yours looks so nice!
5 |
I also have FND and im currently struggeling with it i missed so much school and im constantly tired. I also have your symptons of not being able to walk. Im currenly healing and im very lucky to have the blessing to be able to "walk" again. I just wanna say stay strong and that ur staying happy gives me a bit more power to heal thank u. I also think its good ur posting about ur FND im so happy that there are more ppl like me and im not alone.
30 |
I’m so happy for you to be more independent. Your smile is bright and so is your future! Wishing you the best!
2 |
As a french, it's weird to even think about buying a cheap wheelchair, cause here you automatically have one for FREE when you quit the hospital, so yeah, you're ending buying a custom one with only a part pay by state if you're paralysed for a long time, but you'll never buy a classic cheap wheelchair here.
And it's the same for crutch, brace, even some custom brace made directly for your form and needs are free with our "carte vitale".
When I see some for sell, I wonder why someone will need to buy that in Europe, cause it's usually free, even outside UE.
6 |
I'm so happy for you. Getting your mobility back is life changing. I'm working on getting my mother one.
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I also have a similar condition to you. We thought it was Tourette’s syndrome, but a professional at Phoenix Children’s Hospital diagnosed me with an FND. I have one tic where my legs will wobble as I walk and make it difficult for me to be mobile sometimes. Thankfully I don’t need mobility assistance, but it can get very painful at times. The worst part is that medication doesn’t do anything.
26 |
Super cute wheelchair
2 |
Happy custom wheelchair birthday!
Two days of me having my first chair, the requisite cheap amazon chair lol, and its already given me so much. i can't wait to get a custom chair that's really for me. Your videos helped me accept needing a chair and truly see all the good things that are coming to my life now that i have one.
2 |
You sold that so well you made me think "yeah, I totally should get a custom one too, that looks so much more comfortable!"... bru I don't need a wheelchair.
2 |
I have similar symptoms to you, though they are not as bad as they used to be, they are once again getting progressively more frequent and Ive been waiting for 3 years now to get a diagnosis. Im finally accepted to see an neurologist in 2 months and I'm really hoping they can help me work out whats wrong and give me some extra support.
I am sometimes unable to complete tasks by myself such as cooking and walking the dog as I cannot stand up straight for longer than a few seonds. I do my cooking on the floor from now on. My work has also tried to fire me multiple times since I dont have a diagnosis and they accused me of faking my symptoms.
Your videos remind me that im not alone.
13 |
So happy for you! 💖
38 |
I'm glad you were able to get a chair that fits you just right! ❤
4 |
That’s great. Glad to see you have the support with practical things to help you live life
1 |
@59spooky70
2 months ago
Thing like this remind me that it’s important that we remember nobody is “confined” to a wheelchair. A wheelchair means freedom for so many people. I’m so glad you were able to get a custom wheelchair!
871 |