PokeVideoPlayer v23.9-app.js-020924_
0143ab93_videojs8_1563605_YT_2d24ba15 licensed under gpl3-or-later
ImmersiveAmbientModecolor: #b5a397 (color 2)
Video Format : (720p) openh264 ( https://github.com/cisco/openh264) mp4a.40.2 | 44100Hz
Audio Format: 140 ( High )
PokeEncryptID: d7728ea842cd6147b40244dc0bbb1ef236333ca49f7f2ee9326357c8700bbdcc68065b9060181a6c47b3269d969b6a89
Proxy : eu-proxy.poketube.fun - refresh the page to change the proxy location
Date : 1732229364705 - unknown on Apple WebKit
Mystery text : NHdadG1pdDkzLTQgaSAgbG92ICB1IGV1LXByb3h5LnBva2V0dWJlLmZ1bg==
143 : true
34,356 Views • Jul 16, 2024 • Click to toggle off description
#wheelchairuser #awareness #wheelchair #accessibility #disability
-------------------------------
⭐️ instagram ▹ www.instagram.com/zara.bethx/
⭐️ join my discord server ▹ discord.gg/zarabeth
⭐️ become a channel member ▹ youtube.com/channel/UCLvAmmzhy_4kl2oMje9Rk5w/join
⭐️ stream my music ▹ distrokid.com/hyperfollow/zarabeth/shes-mine
⭐️ all socials ▹ portaly.cc/zarabeth
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
-------------------------------
-------------------------------
✰ FAQs ✰
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and dysautonomia along with being autistic and queer! I also advocate for mental health.
2. What is FND? 🧠
‣ fndhope.org/fnd-guide/
3. What is Tourette's?
‣ www.nhs.uk/conditions/tourettes-syndrome/
4. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
5. What filming equipment do I use? 📸
‣ main camera* - amzn.to/3MW7v8w
‣ tripod* - amzn.to/3P7G8Ly
‣ vlogging camera* - amzn.to/42CBQ1G
‣ mic* - amzn.to/3qD5gjg
‣ wireless mics* - amzn.to/3X2RxOE
⭐️ YouTube Setup + Equipment* ▹ amzn.to/42QmxCN
⭐️ Recommended Products* ▹ amzn.to/41wXJPX
(*af links mean i make a small cut from any purchases, but this doesn't cost or affect you! 💕)
-------------------------------
✰ About Me ✰
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Dysautonomia. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube & Instagram) to advocate and raise awareness for my conditions and share what it's like living as a neurodivergent and disabled person. I am autistic, sharing my sensory struggles along with my experiences with mental health disorders.
I share the accommodations I use to help my daily life, and I'm an ambulatory wheelchair user documenting my life using mobility aids and how chronic illness symptoms vary from day to day!
I'm a musician with a song called "She's Mine" available on all streaming platforms, and I'm an artist with a small business and website selling my artwork, disability merch. I also love reading, writing, and I'm currently writing a novel and a book/memoir about my l
Views : 34,356
Genre: Entertainment
License: Standard YouTube License
Uploaded At Jul 16, 2024 ^^
warning: returnyoutubedislikes may not be accurate, this is just an estiment ehe :3
Rating : 4.987 (12/3,807 LTDR)
99.69% of the users lieked the video!!
0.31% of the users dislieked the video!!
User score: 99.53- Masterpiece Video
RYD date created : 2024-08-02T20:36:26.668537Z
See in json
72 Comments
Top Comments of this video!! :3
Nice that you have more of an accessible place there, and nice to be there with your dad. You can make some nice memories there😊
90 |
This is horrible - people keep saying I'm lazy, while I'm suffering from serious congenital syndrome. Not to mention sometimes I'm not able to come outside. I understand the pain of disability and wish much health
59 |
Your comment about wanting a bungalow is one I understand so well as I was living in a first floor flat that had a lift so small that I had to fold my wheelchair to make it fit in there, and then struggle down the stairs to then call the lift and my wheels down 😳. As I was already in council supported accommodation I was able to then fight to be moved so that I could have an accessible home. I got a small bungalow and the council completed my level access ramp to allow full wheelchair access December 2023. My best advice to you is to apply to your local council housing waiting list (usually via Home Choice) and make sure you somehow have a full OT assessment at your primary residence which will detail the scope of work needed and that actually it makes more sense at your age as a young adult to be provided your own home. Also push for 2 bedrooms to allow overnight care support so you have that space available, and you won’t need to pay the bedroom tax. It took until I was 37 to get my bungalow as my mobility was too good to be needing my wheelchair so much, but now I am in it, I intend to be here until I hit my 80’s, so another 40 years to go! If you want extra info, give me a shout on my instagram (@Nikki_m_zebra) and I’ll happily let you know what I’ve learnt over the last 20 years as my hEDS has worsened and I’ve needed additional help and support. Stay strong and don’t be scared to fight for what you need and deserve, especially if you’re told you’re too young as the Equality Act means they can’t refuse on age grounds now! Xx
13 |
I feel for your struggles. But I’m glad you are in an accessible house with your dad. Family and friends are priceless ❤
3 |
Im so happy to see you happy!
4 |
I hate my FND flare ups, I always loose the use of my legs, my left side of face droops & dribbles like I’ve had a stroke, words become harder to find and I tend to sleep loads. But having the ability to go into the garden and around home all on one level is a blessing. 💕
1 |
Im happy that u are having a great time and finding ways to make u happy is the best thing ever ❤
2 |
I feel all the same things, I have to force myself to go out for a walk. It helps, I have to find things that distract me in a happy way or enjoyable way sometimes it’s the only way I can reduce symptoms.
1 |
I'm happy you have now found a way to do something that is accessible.
3 |
So Zara, I’ve never felt more seen before. This is one of the hardest things for me too
|
I have an MS flare up for 5 months. It can be so hard, I understand deeply. For some reason my home does not feel like a prison to me, my body does.
|
I'm happy to see you smile!
4 |
I hear you💜💜
Im grateful for my home, but I could really do with a bungalow, but theyre rarer, cost more etc etc. Home can bevome a gilded cage, the chores mount up too. Stay strong 👍💜
|
So cool, enjoy the accessibility 🦾
1 |
I'm SO HAPPY for you having access to a bungalow! This is so wonderful! I live in a flat and it has an en suite as well as a main bathroom. It's SO nice to only have to walk a couple of metres to the toilet from my bed. It makes such a huge difference! ❤
|
Will say we had to push for my bungalow and I’m in my early thirties but once on the council list it’s wasn’t long before getting one as they did say it’s the only way I would have any level of independence.
And my need for the lifeline/call centre is atm down to 3 in 3 years…, which is unheard off. As before every single episode it would be used to get hold of someone one for help, or to get emergency services. Now I rely on my next door neighbour as he is in his late 40s and is disabled too so he knows what it’s like.
This means these we only get help when it’s needed and not just coz I fell.
1 |
Happy birthday Zara! 🎉
|
That's great have fun❤
1 |
happy birthday!!!
1 |
@TomBrzezicki
4 months ago
Even the most comfortable bedroom can become a prison cell if you don't have access to the wider world. It's so important to one's mental and overall health to be able to get out and about and have some control over one's surroundings.
151 |