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11,701 Views • May 29, 2024 • Click to toggle off description
The connective tissue disorder that we commonly talk about is Hypermobile Ehlers-Danlos Syndrome. “Hypermobility” doesn’t just refer to flexible joints. It refers to the connective tissues in the body being different than the average person’s. We have connective tissues in every system of the body, hence why people with connective tissue issues may experience a myriad of symptoms outside of just joint laxity and joint pain. The amount of “hypermobility” varies greatly from person to person. It truly is a broad spectrum regarding how it impacts various people. There is also a continuum with hypermobility spectrum disorder (HSD) and hEDS and one is not more severe than the other generally speaking.
Many of the things showcased in this video can be present without having a connective tissue disorder. There are dozens of these “co-occurring issues” that, when put together, may lead someone to suspect that they have a connective tissue disorder. To receive a diagnosis, you would need to seek a specialist who is confident in EDS or HSD - like a geneticist.
If you have questions, drop them below!
#hypermobility #heds #eds #hsd #ehlersdanlossyndrome #zebra #zebrastrong #mobility #disorder #connectivetissue #connectivetissuedisorder
Views : 11,701
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Uploaded At May 29, 2024 ^^
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RYD date created : 2024-06-16T21:09:18.850841Z
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YouTube Comments - 71 Comments
Top Comments of this video!! :3
That’s me, except for the hernias and varicose veins (thank goodness). But the rest was spot on 😅
17 |
The craving salt and getting dizzy after standing are typically from POTS which is a SUPER common comorbidity with EDS!😊
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Oh wow. I've known about my EDS diagnosis for twelve years and I had no idea there was a connection between that and my salt cravings!
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The heavy handed grip on a pencil or whatever is totally me. I used to be an artist but can’t do it anymore.
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The gripping (and doing everything) with more than necessary force. This is a recent awareness for me. Working on releasing the grip/force to only what's required to get it done.
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I had to laugh at the random injury... I feel you so much on that one! If it's not the knee and me falling in front of my apartment manager trying to get into my car it's my big toe joint subluxing or random metatarrsals going out of joint just walking regularly LOL! And my fingers do the same while I sleep and I have to pull and realign when I wake up so I can pick up things properly. I find that adding electrolytes is necessary while staying hydrated because the dysautonomia in this case of dizziness can be caused by an electrolyte imbalance. So just drinking more water can actually dilute your body's electrolyte household and make the issue worse, unlike with a normally-healthy human who's dehydrated and just needs more water.
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Wait these are all to do with hypermobility? I just assumed these were all normal body reactions
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THIS
Also, I super appreciate being able to see my condition represented in such a way with the bonus of learning important body hacks to keep me safe!
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I'm so impressed on how relatable this is to me! Never heard of HMD before watching your videoa guys! Thanks for making me feel more "normal" :)
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TEAM EDS
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Isn't this the truth!!!
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Well this answers my question on another video asking if hernias are common with EDS. 😊
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I also have a connective tissue disorder calledr marfan syndrome but I didn’t know that salt cravings where related to that, because I definitely do have those (with the rest of the things in the vid). Do you maybe know why that is a symptom?
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Every thing except the two last ones, feel very seen and realizing that I need an expert to help me.😮
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No way gripping too hard?? I thought that was just my anxiety XD do we know what's behind that one?
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My daughter is the most hypermobile of us and she eats an insane amount of salt. Looking for answers.
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Yes as I sit here with a bag of frozen corn icing my knee!
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Raise your hand 🙋♀️ if you’re proof of the connection between hypermobility disorder and autism spectrum disorder 🙋
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Oh dear. It appears i may have had this all my life. Im not sure why im surprised....both my children are hypermobile....
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@beetheanimator
4 months ago
Warms my heart to see people actively talking about hyper mobile disorders, specifically EDS. My mom had it, and it's great to see people shedding more light on it. Keep it up, guys!!!
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