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Audio Format: 140 ( High )
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565,189 Views • Sep 23, 2024 • Click to toggle off description
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✰ FAQs ✰
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and dysautonomia along with being autistic and queer! I also advocate for mental health.
2. What is FND? 🧠
fndhope.org/fnd-guide/
3. What is Tourette's?
www.nhs.uk/conditions/tourettes-syndrome/
4. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
5. What filming equipment do I use? 📸
‣ main camera* - amzn.to/3MW7v8w
‣ tripod* - amzn.to/3P7G8Ly
‣ vlogging camera* - amzn.to/42CBQ1G
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‣ wireless mics* - amzn.to/3X2RxOE

⭐️ YouTube Setup + Equipment* ▹ amzn.to/42QmxCN
⭐️ Recommended Products* ▹ amzn.to/41wXJPX

(*af links mean i make a small cut from any purchases, but this doesn't cost or affect you! 💕)

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✰ About Me ✰
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Dysautonomia. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube & Instagram) to advocate and raise awareness for my conditions and share what it's like living as a neurodivergent and disabled person. I am autistic, sharing my sensory struggles along with my experiences with mental health disorders.
I share the accommodations I use to help my daily life, and I'm an ambulatory wheelchair user documenting my life using mobility aids and how chronic illness symptoms vary from day to day!
I'm a musician with a song called "She's Mine" available on all streaming platforms, and I'm an artist with a small business and website selling my artwork, disability merch. I also love reading, writing, and I'm currently writing a novel and a book/memoir about my l
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Views : 565,189
Genre: Entertainment
License: Standard YouTube License
Uploaded At Sep 23, 2024 ^^


warning: returnyoutubedislikes may not be accurate, this is just an estiment ehe :3
Rating : 4.954 (456/38,940 LTDR)

98.84% of the users lieked the video!!
1.16% of the users dislieked the video!!
User score: 98.26- Masterpiece Video

RYD date created : 2024-11-17T18:23:02.095638Z
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298 Comments

Top Comments of this video!! :3

@MilaEdits-XOXO

1 month ago

It’s so interesting how we take things like this for granted. Thank you for sharing this, great video as always. Love you Zara 💕

1.3K |

@ChronicallyCurious1

1 month ago

I'm nervous to give advice, but as a disabled person that needs adaptations in the kitchen to cook, I can suggest a device that might help you to use the kettle safely. It's called a kettle tipper and it's a wire frame the holds the kettle allowing you to pour it without picking it up. You can buy them online for about £20. (You still might need help to fill the kettle with water using a jug).
I hope this is helpful and thank you for sharing your experience and highlighting this important issue.

1K |

@TheMeggieShow

1 month ago

I feel so bad for you and other people with non-accessible houses dispite needing one. My school isn't accessible and one of my best friends (who has most likely got FND and I think she's going to start the diagnosis journey for it) has been more fainty and ticky recently. I had to stay with her after-school just to help her get down the stairs (I honestly love helping her cus she's so fun to be around but yk what I mean) 💕

774 |

@oliverg6864

1 month ago

Hey, I read this book called "crip up the kitchen" and it was really interesting, you might find it helpful, but in the book he talks about using the instant pot a lot, set up a lower table where you can roll your chair under. It has a lot of functions like saute, like you would on a stove, but it's easier to reach.

85 |

@Seriouslydonotcare

1 month ago

That fork statement is so real lol

102 |

@theyoftheravens

1 month ago

Not a wheelchair user but am a spoonie that happens to be short. I really recommend getting a couple reachy-grabber stick tools, it helps so much for getting stuff down from tall shelves, or picking things up from the ground if I'm too dizzy to lean.

123 |

@Molding_piecs_of_bread

1 month ago

IM SO HAPPY IM NOT THE ONLY ONE THAT TRIES TO FIND THE BEST FORK

16 |

@willowswonderfulworld8166

1 month ago

Hi! Im a wheelchair user and i dont have any advice but you inspire me to keep going and stay alive thanks!

15 |

@ss_od

1 month ago

Love the architects t shirt 🤘

11 |

@50RatsinaCoat

1 month ago

I'm still on an NHS waiting list to be assessed for ambulatory wheelchair use but I can't wait to be granted one. Being able to get around my home safely on my walkless days is going to be so valuable!

My home, like yours, is not made for a wheelchair and knowing some of the struggles has helped me realise what I may need to change to make my home more accessible!

9 |

@49mrbassman

1 month ago

My partner was in a wheelchair and when she was pregnant with our first child the council moved us into a DPU which although it was wheelchair accessible the kitchen wasn't designed for a wheelchair user. So I ripped it all out and made the kitchen fully accessible for her. Custom made units ,linear motors to open cupboards and bring forward storage racks and carousels, and she could turn her wheelchair 360°. It was absolutely perfect for her. About 5 years ago the council decided to do a decent homes project on all the older properties. When they had finished the kitchen was totally useless for my partner. Typical Council.

22 |

@TheJohno95

1 month ago

I understand what you mean. We don't think about it until we have to. When my ex-wife was in a wheelchair for several months after a surgery, we thought it would be fine. Then we found out that our one-story house had a lot of step-ups and step-downs that don't work for wheelchairs. I got a taste of it myself a few years back when I was on a cane thanks to some medication I was on. Good luck and thanks for bringing notice to these situations.

14 |

@sfc-17

1 month ago

Good on you. I know all about access issues. Can’t offer tips. I am just thankful that you are sharing how impactful this is with the world.

3 |

@MaximusOfTheMeadow

1 month ago

I just keep being amazed at how much of a strong person you are! Strong enough to inspire others. I don't know if I can do that

2 |

@jonas2431

1 month ago

Prayers sent. I've been following for a while and I'm really intrigued on how some things are done. Your a fighter and I'm really glad you're comfy with sharing your journey with us

2 |

@SlavaZone

1 month ago

I was just talking with my husband today about what an accessible house might look like for what I need, what a coincidence! 😊

7 |

@granny-nyan

1 month ago

When I'm in my wheelchair I feel like I sometimes spend more energy trying to reach things than actually resting thanks to the chair 😅

16 |

@lauriensnijers2322

1 month ago

I'm an ambulatory wheelchair user and I look up to the way you give us a voice.
I'm studying social work and I want to write my paper on living with a disability. I'm currently doubting between "Accessibility of public spaces for people with disabilities" and "Portrayal of people with disabilities in the media" You'vr brought so much attention to both and now I can do my tiny part in hopefully educating people and making the world a better place <3

1 |

@WintersChildd

1 month ago

I hope that one day you can get an accessible house and kitchen ❤❤
Seeing you post has made my day, I had a really bad verbal shutdown earlier (almost 2 hours- which is long for me) after what I think might have been a meltdown - it came from sensory overload at school :( so thanks for sharing the struggles and helping me to express my needs ❤❤❤

4 |

@leticiajordaosubliminals9567

1 month ago

i am sorry ur house is not accessible but i am happy to see that sweet smile and how skilled you became with cooking even with the wheelchair, its impressive love. i wish i could help you with it even though i recognize how amazing you are. thank you for sharing this moment. our talented princess❤❤❤❤❤❤

5 |

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