Caregiver Stories
92 videos • 32 views • by Brains For The Cure
1
Sue on the grieving process
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2
Nancy on recurrence and being an advocate
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3
Glioblastoma Caretaker Stories: A sense of purpose
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4
Courtney on caregiver roles and making hard decisions
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5
Nancy on finding a neurosurgeon
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6
Mitch on recurrence and coping with the unknown
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7
Sue on her daughter's loss of independence
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8
Acts of Kindness: Remembering Steve Damm
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9
Tom shares what he learned about resources to help pay for brain cancer medicine
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10
Glioblastoma Stories: Caretaker responsibilities
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11
How Mitch and his wife navigate brain tumor treatment - with a lot of help from her parents
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12
Coming together in crisis
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13
Caregiver Stories: Carrying the burden
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14
Fishers on acceptance, control, and taking help
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15
Finding support in unexpected places
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16
Glioblastoma Stories: Hopeful and Realistic
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17
Courtney on caregiver roles and making hard decisions
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18
Glioblastoma in the family: Planning for the future together
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19
Steve's Last Day
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20
The day my husband was diagnosed with glioblastoma
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21
Terri on making connections
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22
How my marriage changed after my husband was diagnosed with glioblastoma
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23
After Glioblastoma: Staying Connected to the Community
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24
Advice For New Caregivers
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25
Asking Questions to Better Understand
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26
Seeing Changes in Your Loved One After Treatment
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27
Caregiving While Pregnant and as a New Mother
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28
How One Caregiver Stayed Positive
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29
Choosing the Right Medical Team and Relying On Them
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30
Making a Will at an Early Age to Help Plan for the Future
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31
Planning Treatment Around Pregnancy Due Date
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32
This is A Journey
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33
Deciding How and When to Tell a Child
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34
Connecting with Others
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35
Advocating for You as a Caregiver
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36
Living Through the Watch and Wait of a Brain Tumor
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37
Managing Complex Family Dynamics
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38
Caregiving At 23 Years Old
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39
Changes in Her Mom After Surgery
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40
Family Members React in Different Ways During a Diagnosis
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41
Dealing With All the Emotions Around a Diagnosis
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42
Advocating For Your Own Mental Health
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43
Working with Family Members on Their Strengths As Caregivers
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44
Coping with the Loss of Your Mom as a 23 Year Old
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45
Hospice Care After Treatment Stopped Working
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46
Having a Great Relationship with Medical Team
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47
Struggles with Managing It All As a Caregiver
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48
Leaning on Family and Friends and through Head for the Cure
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49
What I Wish I Would Have Known
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50
Turning to Friends for Help
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51
Having Conversations with Secondary Caregivers
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52
Looking for Financial Resources
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53
Remembering The Initial Diagnosis
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54
Getting Involved & Resources
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55
Working with Multiple Layers of Caregivers and Support
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56
Managing Treatment Schedules and Work
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57
Navigating Treatment Options
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58
The Worry Doesn't Go Away
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59
Varying Symptoms of a Rare Tumor
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60
Hearing the Word Recurrence
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61
Who I Could Talk To
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62
Relationship with Medical Team
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63
Humor Was a Blessing During and After First Surgery
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64
Understanding Role of a Caregiver as a Mom
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65
I Became the Researcher to Find the Right Medical Team
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66
Circumstances Around Son's Diagnosis
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67
What Life is Like Now for Nancy
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68
Parents Handle Tragedy in Different Ways
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69
Son's Brain Tumor Affected Our Family
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70
Facing the Reality of the Brain Tumor
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71
I Almost Got Fired by Staunton's Neurosurgeon
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72
Who Takes Care of You as a Caregiver
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73
Nancy's Advice to Caregivers
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74
Leaning on and Working with Your Medical Team
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75
Lack of Resources During Daughter's Treatment
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76
Pediatric Diagnosis with Limited Treatment Options
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77
Understanding Siblings Feelings After Rare Diagnosis
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78
The Role of Caregiver for a Young Daughter
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79
Caregivers Also Need Caregivers
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80
Working with Medical Teams as a Caregiver
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81
Family Dynamics While Grieving the Loss
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82
Other Support Outside of the Medical Team
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83
Helping Heather Day by Day
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84
Sue's Relationship With Her Medical Team
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85
How The Diagnosis Affected Their Family
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86
Heather Maintained Her Humor and Attitude During Treatment
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87
Navigating Insurance and Finances
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88
Staying Busy and Making Memories
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89
Life After Her Daughter's Death
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90
A Team of Caregivers
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91
Remembering When the Tumor Came Back
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92
The Importance of Therapy
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