HDYO International Young Adult Virtual Congress March 21
35 videos • 414 views • by HDYO
1
Genetic Modifiers in HD: Prof Leslie Jones
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2
Lifestyles talk , Staying Healthy: Dr Emma Ynell from Cardiff
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3
My Experience of Juvenile HD: Emily Lawson
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4
My Experience of HD in Pakistan: Khadija Chaudhry
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5
Testing positive: Panel discussion
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6
Voyager research update: Dr Elisabeth Fine
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7
Testing Negative: Panel discussion
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8
Prilenia Proof HD Update: Dr Michael Hayden
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9
What is CHDI?: Dr Simon Noble, CHDI
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10
My Story: Dr Jeff Carroll, HD Buzz cofounder, HD researcher and family member
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11
Apathy: Dr Kelley Atkins
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12
My experience of preimplantation genetic diagnosis: Marianna Ellison
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13
BJ Viau's Story (Former Chairperson of HDYO)
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14
Dance session: Caitlin Griffin
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15
Welcome and the story of HDYO: Matt Ellison MBE
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16
Huntington Lowering Trial: Prof Sarah Tabrizi & Roche Update: Dr Scott Schobel
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17
Wave research update: Jeff Smith
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18
uniQures research update: Dr David Cooper & Dan Leonard
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19
Climbing Everest for HD: Lysle Turner
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20
Yoga session: Natalie Marnica
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21
Managing behavioural symptoms: Jillian Foster
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22
Experiences of HD research: Panel discussion
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23
Enroll HD: Olivia Handley
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24
Charles Sabine & Congress close with the future of HDYO
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25
The biology of juvenile onset HD: Dr Ferdinando Squitieri
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26
Insight into mental health and experience: Panel discussion
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27
Caregiving Q&A: Alex Fisher, with a special guest appearance from some goats
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28
HD Buzz Q&A session: Prof Ed Wild and Dr Jeff Carroll
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29
Factor H South America: Dr Ignacio Muñoz-Sanjuan
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30
The Wexler Story: Alice Wexler
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31
Having children the options explained: Richard Sayer, Genetic Counsellor, and panel discussion
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32
Huntington's Equal Access to Effective Drugs Project 'Heated': Prof Hugh Rickards
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33
Talking with Children about HD - Dr. Bonnie Hennig-Trestman
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34
PTC research Update: Dr. Anu Bhattacharyya and Dr. Brian Pfister
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35
My experience of growing up in a HD family: Kathy Rodgers
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