03:04

Insights from a Duchenne Grandad

04:28

We are Action Duchenne

00:56

Expert support for Duchenne families - anticipatory grief

00:56

David Schonfeld how to talk to your child 2022

00:51

Impact of our Christmas Support project

07:07

Excerpt from interview with Derry fundraisers

14:16

Introducing the Action Duchenne team

00:45

INVITATION from Harry Hill to pick the conference sessions you are most interested in

03:13

13 year old receives scouting award for dedication, courage and determination

00:46

Your invitation to the newly diagnosed Duchenne family virtual event

01:14

A message from Mark Silverman, Action Duchenne Trustee on #WDAD2021

01:04

Florence, National Director of Action Duchenne invites you to register for this year's Conference

03:03

John O'Brien and the Mizen to Malin Head team cycle

11:45

Action Duchenne - it's all about the why

02:57

Lex and Samson Ellison talking about the Leeds Endure 24

12:13

Duchenne Science Live Episode 6 - Bone health and DEXA scans

13:03

Duchenne Science Live Episode 5 - Rare Disease Day special

14:02

Duchenne Science Live Episode 4 - Epigenetics in Duchenne

16:56

Duchenne Science Live Episode 3 - Manifesting Carriers in Duchenne

04:08

Action Duchenne's impact during COVID-19 lock-down

01:35:36

Q&A understanding the psychology of learning and behaviour in Duchenne

18:27

Duchenne Science Live Episode 2 - Metabolic Changes in Duchenne Muscles

01:32:40

Understanding the psychology of learning and behaviour in Duchenne muscular dystrophy

15:41

Duchenne Science Live Episode 1 - Duchenne Gene Therapy Trial Results

01:18:44

Returning to school - expert tips and advice

01:38:46

Returning to school - tips and advice from expert Duchenne physiotherapist

02:24

#WDAD2020 Gary Fegan talks about Duchenne and the brain

01:13

#WDAD2020 Harry Hill, Patron of Action Duchenne

01:49:32

Practical tips from SEN specialist to help support pupils

51:44

Neuromuscular Occupational Therapist Q&A Webinar

01:36:09

Finding a job and working when you live with a disability

01:55:25

Life with Duchenne muscular dystrophy at 42 with Bryan Purdue

01:22:08

Duchenne Physiotherapy Q&A and recap webinar 6 with Marion Main

01:10:06

How to get the most out of your online appointments

01:38

Questions from the kids - Marion Main's 6th physio Q&A session

01:17:29

Duchenne Physiotherapy webinar 5 with Marion Main (looking after parents & carers)

01:31:09

Physiotherapy webinar 4 with Marion Main (orthotics and splints)

00:32

Duchenne Science on Tour 2 - Supporting families making impossible decisions

01:21:14

Physiotherapy webinar 3 with Marion Main (exercises on the floor and in chairs)

01:48:27

Physiotherapy webinar 2 with Marion Main (making stretches fun)

01:05:10

Physiotherapy for adults living with Duchenne with Marina Di Marco

01:42:48

Physiotherapy webinar 1 with Marion Main (Isolate don't vegetate) AUDIO ONLY

01:37

COVID-19 an update from Action Duchenne

01:34:22

Learning and behaviour in Duchenne

01:09

Duchenne Science on Tour 2020

19:07

Vivek Gohil - Accessible Gaming at Action Duchenne Conference 2019

00:45

The Hang Out 2019

00:44

Family friendly Duchenne event with free childcare

00:32

Feedback from last year

00:32

Feedback from last year

00:40

Updated Conference Agenda 2019

00:16

Meet the exhibitors at the Action Duchenne International Conference 2019

00:16

Research posters at the Action Duchenne International Conference 2019

00:16

Newly diagnosed families at the Action Duchenne International Conference 2019

00:59

Action Duchenne Ambassador Jonny Gould shares a message for World Duchenne Awareness Day

01:09

Action Duchenne Patron, Harry Hill, shares a message for World Duchenne Awareness Day.

00:42

Emma and Sally Skydive touchdown

00:13

Support for Duchenne parents at the ADConf19

06:59

Action Duchenne work with online learning tool

01:41:49

Talking with your children about Duchenne - catch Dr Schonfeld's live session