11:41

Things are looking up: update on life with Hypermobile EDS

06:20

Mold illness sucks

08:12

Symptom and doctor appointments update. EDS sucks.

02:19

Generic MS injectable medication was not good for my hypermobile EDS body

06:37

Updates and test results

01:04

Content warning: short talk of assisted death because I am triggered by something I just read.

03:43

48 hour flat test progress

03:19

Halfway through at home 48 hour flat test for suspected spinal CSF leak

06:29

An experience reporting seroqueal side effects. More thoughts on pharmaceuticals

04:31

OHIP funded telemedicine franchise experience

10:07

How I need to spend most of my time reclined, and do I really have MS?

03:32

Short distance walking is better today. Coming out of a month long positional migraine.

12:40

Current symptoms and navigating and impossible medical system with hEDS, POTs, CM1 and MS

12:11

Why I’m wondering if I have a CSF leak

11:06

Symptoms this morning and rambling about why I choose not to have many friends

05:35

My resting heart rate is slowly going down every day since stopping seroqueal

14:24

You can’t cure EDS with celery juice ~ rambling about detox related myths, and documenting symptoms

02:49

Feeling a little better despite terrible head pain

06:36

I called my ENT’s office even though he’s now a plastic surgeon

07:05

Symptom update (off seroqueal)

01:48

I don’t like seroqueal

05:12

Brain fog

05:52

Craniosacral therapy is great

06:29

Involuntary movement update

03:23

Keeping a record of walking difficulty

07:12

Desperately seeking a doctor with knowledge of neurological complications of hEDS

10:03

Discussing new symptoms with my doctor

10:49

Orthostatic intolerance and isolation

02:04

I woke up thinking it was going to be a better day, then I stood up

15:25

Confusing current symptoms and wanting to be vertical

13:33

The swooshing sound inside my head - EDS and MS thoughts

14:53

Neck and shoulder pain, and bad doctors

13:22

I need to talk about my neck

14:39

Health updates: EDS, MS, POTs, CM1, CCI and possible CIRS

06:13

A rant about another experience of covert ableism for Disability Pride month

13:25

EDS and HSD awareness month —experiences with orthopaedic and neurological manifestations of hEDS

03:53

Dear Body (Happy Earth Day) 🌎

18:32

Observations of life from a chronically ill ambulatory wheelchair user (don’t pity me. I’m happy)

09:21

We took a risk and went to the dog park.

11:30

I am feeling a lot of contrast.

14:52

Learning how to be still. I never fully recovered from H1N1.

18:10

Feeling stuck with chronic subluxations, inflammation, neuropathy and exhaustion in wintertime.

11:47

Thoughts on life in survival mode

11:49

How am I doing?

28:07

Deconstructing my neurology report - Do I need a wheelchair? (EDS and MS)

13:37

Having EDS sucks because doctors suck: A rant

04:46

I Still Exist

08:42

chronic illness and isolation unstructured rant

13:47

Content warning: I didn't rape my attacker. Stop the proposterous blame flipping.

02:29

make it up as you go musical venting improv consciousness stream musical journaling whatever

04:43

Lemon Tree - Nine of Nine

04:32

Reciprocal - Nine of Nine

04:41

Change (Banks cover) - Nine of Nine

02:10

Untitled Instrumental - Nine of Nine

02:17

At Last (Etta James cover)

03:52

...

05:27

Girls Just Wanna Have Fun (Cyndi Lauper cover) - Nine of Nine

14:15

On Having EDS and the Difficulties with Group Activities

04:32

Sand By Nine of Nine

01:56

experi-mental breakdown