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Courageously Persistent @UCkd_pk_gXlwYf4677i37CPw@youtube.com

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Hello! We are so happy you are here. We want you to feel wel


20:37
Garden Butterfly Landing Experience at Epcots Flower and Garden Festival | Sunday Vlog
15:20
8 Month Old Growth Journey with Cornelia de Lange Syndrome | CDLS
10:05
WHEELCHAIR/ MOBILITY STROLLER EVALUATION | GOD IS ENOUGH
26:47
Celebracion Encanto Magical Moment at Epcot | Neurology and Speech Therapy Update
11:24
Getting Stronger | PT and OT Update | CDLS
30:12
POW WOW A celebration of the Native American Culture in Auburndale Fl | Meeting a Wolf
29:51
VALENTIINE DATE at California Grill
09:37
What are you giving? | Sunday Vlog
07:56
Getting Stronger and Playing | PT and OT Update | CDLS
07:21
Does She Need Hearing Aids? | CDLS
14:59
Family Valentines Date | Magic Kindom FINAL
28:24
We Out Here and We're so grateful | SEU Conference 2025
14:28
Still Standing | SEU Conference 2025
06:00
Virtual Speech Therapy appointment | Chill Day at Home
10:19
What's in your hand? | Sunday Vlog
16:34
PT and ST Update | Basketball Game | CDLS
27:02
VIP At Disney’s Hollywood Studio | Disney Jr. Play and Dance!, A Frozen Sing Along and MORE!!
19:45
Daddy Daughter Day at Magic Kingdom | Parade, Carrousel , Dumbo, Tomorrowland Speedway and MORE!!
11:38
Letting Go Of Tomorrows Burdens So You Can Be A Present Parent Today | Sunday Vlog
31:35
PT, OT and ST Progress | Obedience Over Sacrifice | Cornelia de Lange
12:02
Plans for Going Live
03:55
UPDATE!! Getting Ready To Go LIVE
13:14
Family Day at Animal Kingdom | DinoLand USA | The Boneyard
12:44
Epcot's Festival of the Art 2025 | Sunday Vlog
08:26
Alpha & Omega Basketball Tournament
17:20
7mo Old Physical Therapy/OT Update | Cornelia De Lange Syndrome
09:37
Errands, Cleaning, and Finding Peace in Jesus in What Some Call a Difficult Situation
10:01
Visiting Our Storage Unit and New Ideas Final
28:18
Gastrointestinal Appointment | House Clean Up | Cornelia De Lange
26:02
Pastor Appreciation Day!! | Sunday Vlog
18:16
Daddy Juggling 4 Appointments with 2 under 2
19:14
A Day at Animal Kingdom after a Wellness Check up | Dinoland USA and Character Meet and Greet
15:06
We lost Valeria's Feeding Pump Charger | Cornelia De Lange
20:32
Daily Routine with My 6mo old CDLS Baby | Cornelia de Lange Syndrome
15:57
Chill Day at an Empty Magic Kingdom | Disney World
22:37
Valeria's Presentation to the Lord || Sunday Vlog | CDLS (Cornelia De Lange)
16:21
PT, OT and ST in One Day | CDLS (Cornelia de Lange)
17:22
Audiology Appointment for 6mo old with CDLS | CDLS (Cornelia de Lange Syndrome)
05:49
Valeria Speech and Orthopedic Appointment | CDLS (Cornelia de Lange Syndrome)
17:28
What a Service! | Sunday Vlog
39:07
Our Experience at the Alpha Omega Worship Center Lock-In
09:32
Making sure 6mo old with CDLS does not have RSV
20:01
First Primary Doctor Appointment After Visit To ER | RSV FInal
15:01
New Years Day | Update on our Sick Toddler and Cleaning because she's sick
20:10
An Unexpected New Years Eve
11:29
Christmas Eve Dinner | Opening Presents
15:58
Get ready with me for Christmas Eve
18:52
Juggling 3 Appointments and an Unexpected ER visit | Cornelia de Lange Syndrome
13:09
Christmas Concert at SEU 2024
26:34
Family Lunch Date | Physical and Occupational Therapy Update | Cornelia de Lange Syndrome
13:19
Epic Family Dance Party at Epcot! | Fun Moments & Magical Memories!
14:04
Our 2 year old Birthday Celebration || Magic kingdom
12:22
Our 2yr Old Frozen Theme Birthday Celebration || Disney and Hollywood Studio
12:49
NEW!! Passholder Magnets, and Rafiki’s Wildberry and Dole Whip Orange Float || Animal Kingdom
40:25
Disney Dreams That Soar Drone Show at Disney Springs || Sunday Vlog
42:55
Repeat C-Section at 37 weeks After High-Risk Pregnancy and prior Fetal Surgery
30:26
Life In The Hospital While Pregnant 34 to 35 weeks
29:33
Hospitalized at 33 Weeks Pregnant
05:03
We Went to a Graduation 32 Weeks Pregnant
31:46
31 Weeks Pregnant Doctors Appt | Blue Compass RV | Lake Eola Park | John & John's Pizza Orlando, FL