27:40
Terry Pirovolakis: A Fellow Dad Raising Funds for His Son (Part 2) - Parents quest to find a cure
22:36
Terry Pirovolakis: A Fellow Dad Fighting for His Son (Part 1) - Parents quest to find a cure
35:57
Dr. Ethan Perlstein Discusses Drug Repurposing for Rare Diseases - Parent's quest to find a cure
23:42
Rare Together Watch Together: A Night Of Tears, Smiles, And Reflection - Parents quest to find cure
36:22
#16 - Anticipation: Experimental Drug Offers Hope - Raising Rare: Parents quest to find a cure
25:59
#15 - When Unrelenting Stress Meets Relentless Parents - Raising Rare: Parents quest to find a cure
14:28
#14 - Leaders in the Club Nobody Wanted to Join - Raising Rare: Parents quest to find a cure
20:47
No Search Results. A Fellow Traveler’s Relentless Pursuit of a Cure (Part 1) | Raising Rare
27:03
#12 - Deep Gratitude - Raising Rare: Parents quest to find a cure
20:04
#11 - Learning His Language - Raising Rare: Parents quest to find a cure
11:44
#10 - Difficult Decisions - Raising Rare: Parents quest to find a cure
11:50
#09 - It's just not humanly possible - Raising Rare: Parents quest to find a cure
32:30
#08 - We Need Decisions Leading to Therapies for GPX4 - Raising Rare: Parents quest to find a cure
27:54
#07 - Managing the Day With a Child With a Rare Disease - Raising Rare: Parents quest to find a cure
21:41
#06 - The First GPX4 Conference Ever (Part 1) - Raising Rare: Parents quest to find a cure
07:08
[Special Episode] Impact of COVID 19 - Raising Rare: Parents quest to find a cure
22:38
#05 - Finding Help in the Land of (Intellectual) Giants - Raising Rare: Parents quest to find a cure
23:32
#04 - Hope. Action. Strength. Hope - Raising Rare: Parents quest to find a cure
30:40
#03 - Meet Raghav's Mom - Raising Rare: Parents quest to find a cure
22:38
#02 - We Are Not Alone on This Climb - Raising Rare: Parents quest to find a cure
35:33
#01 - Connecting the dots of life - Raising Rare: Parents quest to find a cure
03:11
Raising Rare - Parents quest to find cure for son's rare disease
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About
SalemOaks and CureGPX4.org presents Raising Rare. Raising Rare is a podcast following a parents quest to cure their son’s ultra rare disease. You will listen to their story as it happens raw, uncut, week-by-week as they inch towards treatment.
Raising Rare will follow Raghav’s journey of fighting against all odds to find a treatment. You will have the opportunity to participate, cheer, and even directly help Raghav become successful in life. Subscribe to the podcast, listen to their story, and ask your friend to join us on this journey.
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