Genetic Alliance UK | Poke

Genetic Alliance UK @UCijmBZ2jMitnQ5OKY9TJvsA@youtube.com

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Genetic Alliance UK is an alliance of over 200 charities and

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CONCORD study findings

Shining a light on Stevens-Johnson syndrome

Rare Conditions: The Stories Behind the Stats

Homozygous Familial Hypercholesterolaemia - Together Caring for Rare Disease

Louise Fish Interview – Together Caring for Rare Disease

Medscape Education Global – Together Caring for Rare Disease

Pfizer – Together Caring for Rare Disease

Bionical Emas – Together Caring for Rare Disease

PTC Therapeutics – Together Caring for Rare Disease

Coordinating Care – Together Caring for Rare Disease

Understanding Rare Disease – Together Caring for Rare Disease

Volv Global – Together Caring for Rare Disease

The University of Oxford – Together Caring for Rare Disease

Coordinating Care – Together Caring for Rare Disease

Introducing ‘Together Caring for Rare Disease’

TMC Pharma Services – Together Caring for Rare Disease

Together Caring for Rare Disease – Full programme

Together Caring for Rare Disease – Official trailer

Rare Disease Day 2022 – Four videos

Highlights of our programme, 'Shining a light on rare conditions'

‘Shining a Light on Rare Condition’ – Genetic Alliance UK's 2022 full programme.

Genomics England

Health Education England

HRA Pharma studio interview – 'Shining a Light on Rare Conditions'

The Wellcome Centre for Mitochondrial Research 'shining a light on rare conditions' Original

Dear Mellissa - Rare Disease Day official video #4

Dear Jace - Rare Disease Day 2022 official video #3

Dear David - Official Rare Disease Day 2022 official video #2

Dear Ayaan: Rare Disease Day 2022 official video #1

Shining a light on rare conditions trailer 2022

Show me your rare challenge

Rare Disease Day 2021 UK's Official Video

Interview with winners 'Journey of Hope'

Sharon Hodgson MP at Rare Film Festival 2020

Go Make Memories by Niemann-Pick UK

Getting Together with Duchenne: The Power of Gaming

Rare Disease Day 2020

Illuminate the rare reality

Ian's rare reality

Nicholas' rare reality

Jeff's rare reality

Jack's rare reality

Patients' experiences of rare diseases [Trailer]

Our family: living with a rare condition (full)

Our family: living with a rare condition (trailer)

Implementation plans for England published