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HDYO @UCiO73l6SP8_x6Rci_ZX3ZUA@youtube.com

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The Huntington's Disease Youth Organization (HDYO). We're an


01:09:20
Breaking Down Barriers - Cultural Stigmas Around Huntington's Disease
03:46
HDYO Research Video Series: Understanding Expansions at the Single Cell Level
19:39
HDYou Community Stories: Being Impacted by Juvenile HD
41:24
HDYou Community Stories: Robyn's Testing Story
17:02
A Deeper Look Into HonestlyHD.com
02:38
HDYO Research Video Series - CRISPR-Based Drugs: One Giant Leap for Mankind
01:18:27
Breaking Down Barriers - A Conversation About Cultural Stigmas & HD
50:30
Breaking Down Barriers - Genetic Modifiers and HD
05:09
Hablar de la EH con sus hijos (Talking about HD with children Spanish Version)
28:02
HDYou Community Stories - Vivir Con Ella
04:01
HDYO Research Video - Steady Progress from uniQure
33:20
Breaking Down Barriers: Understanding Expanded Access
05:34
HDYO's Prata om HS med dina barn/Talking to children about HD Video (Swedish version)
59:21
HDYou: Community Stories - Asking for Help
32:30
Breaking Down Barriers - Conversations Around Suicidal Ideation and Self-Harm
04:11
Research Video Series: Regulating Repetition
05:44
Breaking Down Barriers - Access to HD Research
49:08
Breaking Down Barriers - What is a Biomarker?
39:08
Breaking Down Barriers - A Casual Conversation with Roche
28:39
HDYou Community Stories: Jozefine's Testing Story
03:46
HDYO Research Video Series: Could halting CAG expansions be a new treatment for HD?
06:04
Vídeo de quadro branco falando sobre HD com crianças (versão em português)
46:03
HDYO Breaking Down Barriers - Somatic Instability
03:02
Research Video Series - Youthful Competitors: Young Brain Cells Oust The Old
02:20
Research Video Series: Drug to treat movement symptoms of HD approved by FDA
36:15
An Update from HDYO with Matt and Jenna
43:25
Breaking Down Barriers: Stigmas Around Grief and Loss
38:04
HDYou Community Stories: Deciding Not to Test for HD Gene
01:08:25
Stigmas Around Drug Delivery Methods
05:27
Breaking Down Barriers - Speaking to Children About HD
52:59
HDYou: Community Stories: Emma & RJ's Testing Stories
03:05
HDYO Research Video Series Part Two - Updates from PTC Therapeutics and uniQure
03:06
HDYO Research Video Series Part One - Updates from PTC Therapeutics and uniQure
42:25
Breaking Down Barriers - A Casual Conversation with Prilenia
44:22
Breaking Down Barriers - A Casual Conversation with Wave Life Sciences
04:25
Charlotte's Testing Story: Coping Days After Result
04:48
Charlotte's Testing Story: After the Results
09:43
Charlotte's Testing Story - Testing Positive
03:40
Charlotte's Testing Story: Day Of Getting the Results
03:13
Charlotte's Testing Story: 2 Days Until Test Results
03:17
Charlotte's Testing Story: Testing
03:26
Charlotte's Testing Story: Preparing to Test
02:17
Charlotte's Testing Story: Deciding to Test
01:59
Charlotte Testing Story - Introduction
03:44
Research Video Series - Hunting for balance: how the huntingtin protein compensates in HD
13:53
Scientific Update - mRNA Splicing Platforms: Everything You Wanted to Know
44:12
Self-Care Isn't Selfish
33:18
Juvenile-onset HD - JOIN-HD and Other Research Opportunities
29:39
Scientific Update: Huntingtin Lowering: More than one way to peel a banana
20:41
Scientific Update - Allele Selectivity Approach to Lowering Mutant Huntingtin
32:44
Scientific Update - Gene Therapy: A Closer Look
34:12
HD 101 - Learn the basics of Huntington's disease
01:03:26
Experiences Participating in Research
36:33
Talking to Kids about HD
26:33
Managing & Coping with Grief and Loss
38:14
Family Planning - Understand some of the options as you may be considering starting a family
35:45
Dual Perspectives Q&A - Part 2
39:37
Dual Perspectives Q&A - Part 1
31:44
Professional Experience: Supporting Young People Impacted by HD
13:10
Awards Ceremony