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National Urea Cycle Disorders Foundation (NUCDF) @UCfWoUvfdLaLiVI67YLZrjtQ@youtube.com

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We know urea cycle disorders. We live to conquer them. The N


01:56
Recognizing the signs of urea cycle disorders
00:18
Caregiver Support
00:50
Focus on Siblings
10:47
Caregiver Support Interview: Amy Magyar
01:09
OTC Carrier Study: Carrier Female Risks
02:34
OTC Carrier Study: Goals and Plans for the Future
01:29
OTC Carrier Study: What Should Female OTC Carriers Do?
48:28
Marifi Escobar: Kickoff session
28:18
Kristy McCracken: Transition to Adulthood
17:51
New insights on liver disease in UCDs, with Dr Lindsay Burrage
29:39
Emerging knowledge from MRI imaging studies: Is ammonia control enough? with Dr Andrea Gropman
42:28
Keynote Address: Legacy of Hope, with Dr. Sandesh Nagamani
32:41
Improving diagnosis with the awesome power of yeast genetics, with Dr. Aimee Dudley
22:52
Making the choice between medical management and liver transplant, with Dr Nicholas Ah Mew
33:30
A long-term perspective on liver transplant decision making in UCDs, with Dr. George Mazariegos
10:50
Tribute to Debra Hook, Ph.D., R.D., with Tresa Warner and Amanda Sonntag
31:23
Fork in the road: Improving your UCD diet, with Dr Erin MacLeod
37:06
Gene therapy: Is it the new frontier? with Dr Shawn McCandless
30:40
Hope happens here: Understanding and participating in clinical trials, with Dr. Susan Berry
16:50
Panel discussion: Drs. Nagamani, Gropman, Burrage
40:57
Panel discussion on liver transplants: Drs. Mazariegos, Ah Mew, and Dudley with the Dinon family
19:47
Panel discussion: Drs. McCandless, Berry, MacLeod
01:11:27
A tribute to Cindy Le Mons
32:19
Living with a UCD in a COVID-19 World
09:36
Urea Cycle Disorders Overview
01:53
NUCDF: Who We Are
05:05
Behind the Science: Improving Diagnosis of Urea Cycle Disorders
04:27
Celebrate Rare Disease Day 2024 with NUCDF
06:11
Longitudinal study of urea cycle disorders: The Urea Cycle Disorders Consortium (UCDC)
04:29
Celebrate Rare Disease Day with NUCDF
10:38
Zoeys Story
04:01
Cure the Cycle Challenge Fundraiser