I started making videos for one reason, to help other people going through what I am going through learn from what I have to offer in regards to physical movements slowly changing over the course of being diagnosed with LGMD2A. I started a non-profit organization to raise both awareness and money to fund research for a cure. You can visit the site by going to www.beyondlabelslimitations.com to learn more about what I am doing and how you can help. I have also started a podcast called, "Beyond Labels & Limitations, The Podcast." You can find it wherever you get podcasts. In the podcast, I talk about living with LGMD and what it's like, the struggles I encounter and solutions I've found helpful.
Thank You for finding me.