Welcome to our channel! We’re Minie (mum), Manny (dad), & Beatrice, our little warrior with Kabuki syndrome. Originally from Italy 🇮🇹, we’re now living in Sydney 🇦🇺, sharing Beatrice’s incredible journey 🎗️.
Her story hasn’t been easy—open-heart surgery at just 8 days old, 11 hospitalisations in her first 8 months, and ongoing challenges like hypotonia, hearing loss, hip dysplasia, and living with one kidney. She was tube-fed for 14 months and has faced tough times with reflux and respiratory infections.
But through all the therapies (OT, physio, speech), tears, and hard days, we also laugh, grow, and find joy together. We’re a team, determined to create a beautiful, love-filled life with resilience and a lot of humor.
We share our roller coaster to raise awareness about Kabuki syndrome, connect with others, and inspire hope. Join us for stories of strength, parenting, and our family’s unique journey—from Italy to Sydney! 💚