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IAMGSD Videos @UCQLhZr6mSE5jU0PEbMipCMQ@youtube.com

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These videos are about muscle glycogen storage disease (GSD)


27:28
An introduction to IamGSD resources
12:07
Introducing IamGSD’s six campaigns
07:36
Future Leaders Training Course
11:45
Sioned’s Rare Disease Day 2022
10:43
An introduction to exercise in McArdle disease – Joff Brown
04:40
The benefits of walking poles in McArdle’s
27:01
Part 2: Research for McArdle Disease – Prof Ros Quinlivan
19:04
Part 1: Research for McArdle Disease – Prof Ros Quinlivan
15:23
Clinical Practice Guidelines for GSD5 & 7 published – Stacey Reason
05:44
Training support webpage and resources
08:23
12-Minute Walk Test in McArdle disease
13:40
Importance of exercise and how to do it safely with GSD5
26:41
McArdle’s Phase1b trial & partnering with Patient Advocacy Organisation
28:14
Psychological factors in neuromuscular conditions
17:26
The McArdle’s Experience – training/walking courses
16:28
Clinical Practice Guidelines for GSD V and VII
07:00
Walking Course, Germany, 2019
09:15
Pain? What Pain?
02:15
Walk over Wales makes the 6pm ITV News
03:54
Walking with McArdle’s course 2018
01:48
Lucy on some benefits of early diagnosis
13:29
Walking course California, October 2017
03:58
Sioned Williams - Thoughts on a life-affirming journey
04:44
Living well with McArdle's
16:19
Walking with McArdle’s - English sub-titles
20:36
Walking with McArdle’s events – Summer 2015
19:52
Crib Goch with McArdle's
04:47
McArdle Disease – Andy Williams – Benefits of Ketosis
16:19
Walking with McArdle’s
06:06
AGSD-UK Walking with McArdle's Week 1 Wrap Up
03:04
AGSD-UK Walking with McArdle's Week 2 Day 1
00:22
AGSD-UK Walking with McArdle's 2012 Week 1 Day 7 - Green Bridge
00:38
Walking with McArdle's 2012 Week 1 Day 4: Andrew Abseiling
01:41
Walking with McArdle's 2012 Week 1 Day 4: Stacey Abseiling
01:12
Walking with McArdle's 2012 Week 1 Day 4
00:33
AGSD-UK Walking with McArdle's Week 1 Day 3
00:35
AGSD-UK Walking with McArdle's Week 1 Day 3 stepping stones
00:22
AGSD-UK Walking with McArdle's Week 1 Day 3 creek crossing
00:41
AGSD-UK Walking wih McArdle's - Week 1 Day 3
00:49
AGSD-UK Walking with McArdle's Week 1 Day 2 - boat trip
01:14
Walking with McArdle's 2012 Week 1 Day 2
01:51
Walking with McArdle's 2012 - Introduction
02:54
Walking with McArdle's 2012 Week 1 Day 1
15:37
An introduction to McArdle Disease
00:33
McArdle Disease - generation game
00:43
McArdle Disease - walking poles
01:07
McArdle Disease - stepping up
00:39
McArdle Disease - zig-zag technique
01:46
McArdle Disease - tackling steep ground
00:59
McArdle disease - second wind