30:26

Respiratory Ciliopathy and BBS - Prof Claire Hogg - BBS UK Conference 2024

18:11

Introduction to BBS - Dr Shehla Mohammed - BBS UK Conference 2024

02:59

Closing remarks Laura Dowswell - BBS UK Conference 2024

17:25

Q&A with Dr Elizabeth Forsythe, Dr Arlene Drack, Dr Shehla Mohammed and Prof Phil Beales

26:17

BBS Gene Therapy & Clinical Trials - Dr Arlene Drack - BBS UK Conference 2024

15:24

Update on Setmelanotide - Dr Elizabeth Forsythe - BBS UK Conference 2024

15:40

A Journey of Resilience and Triumph - Bilaal Ali - BBS UK Conference 2024

15:26

Irritable Bowel Syndrome IBS and BBS - Kelly Slater - BBS UK Conference 2024

10:10

Fundraising Roundup - Samantha Serido - BBS UK Conference 2024

36:13

Artificial Intelligence for Accessibility - Hector Minto - BBS UK Conference 2024

06:25

Sibling Q&A - Greg Dowswell and Clare Kassa - BBS UK Conference 2024

20:28

Supporting Siblings - Clare Kassa - BBS UK Conference 2024

10:46

A Sibling's Perspective - Greg Dowswell - BBS UK Conference 2024

08:33

Q&A - Prof Phil Beales, Dr Shehla Mohammed and Prof Claire Hogg - BBS UK Conference 2024

26:00

Update on Research and Study of BBS - Prof Phil Beales - BBS UK Conference 2024

04:05

Welcome - Laura Dowswell - BBS UK Conference 2024

02:32

Contact details - BBS UK Spring 2024 newsletter

04:46

BBS UK Out and About - BBS UK Spring 2024 newsletter

02:18

Cilia Conference 2024 - BBS UK Spring 2024 newsletter

04:22

Research Round Up - BBS UK Spring 2024 newsletter

04:21

Sicilian Adventure - BBS UK Spring 2024 newsletter

03:22

VI Mentoring with LOOK - BBS UK Spring 2024 newsletter

04:26

VI Cricket and Representing England at the IBSA World Games - BBS UK Spring 2024 newsletter

06:27

Healthy Eating Workshops - BBS UK Spring 2024 newsletter

02:29

Ireland Regional Group’s Meetup in Dublin - BBS UK Spring 2024 newsletter

01:40

Medical Information Booklet Review - BBS UK Spring 2024 newsletter

02:39

Service User Advisory Group - BBS UK Spring 2024 newsletter

02:19

Are you a Member of BBS UK? - BBS UK Spring 2024 newsletter

03:58

Annual Conference - BBS UK Spring 2024 newsletter

03:58

Social Care Student Visit to Great Ormond Street Hospital - BBS UK Spring 2024 newsletter.

01:56

Advice Service Report - BBS UK Spring 2024 newsletter

09:34

BBS UK Clinics Support Service - BBS UK Spring 2024 newsletter

13:04

Fundraising roundup - BBS UK Spring 2024 newsletter

03:51

Front cover and foreword - BBS UK Spring 2024 newsletter

03:21

BBS UK Contact details

02:05

BBS UK Trustee position available

01:24

BBS Global Day 2023

02:25

BBS UK Out and About

07:24

BBS Regional Group Ireland: Information Day May 2023

03:49

Are you a Member of BBS UK?

02:11

BBS UK Advice Service Update

05:21

BBS Clinics Update

05:29

Fundraising Round Up

02:52

Welcome to Team BBS UK

01:10

Your Thoughts about Conference 2023

03:42

Personal Perspective by Azrat Mirza

01:35

Thomas Pocklington Trust by Matt Harrison and Rachael Foley

02:48

Introduction to Microsoft and Accessibility by David Prince

03:04

From feeling alone to making an effort to change the BBS world by Bendert De Graaf (BBS Netherlands)

05:13

Obesity in BBS: Mechanisms and Treatments

03:01

Personal Perspective by Ciaran Moy

01:41

Urology Differences in BBS by Dr David Game

03:02

Personal Perspective by Richard Zimbler

02:13

Update on Research and Study of BBS by Professor Phil Beales and Professor Helen May-Simera

02:41

Foreword by Laura Dowswell, Chair of BBS UK

01:31

Front cover and contents

10:23

A Personal Perspective: Richard Zimbler

14:54

A Personal Perspective: Azrat Mirza

03:08

BBS Registry: Doctor Elizabeth Forsythe

21:41

From feeling alone to making an effort to change the BBS world: Bendert De Graff