14:28

WSUK - A year in review

42:54

TREATWolfram Trial Update - Prof Barrett

33:15

What's new in published research, and update on current and future treatment trials

21:25

WSUK - expanding our reach

39:24

Therapeutic Development for Wolfram syndrome - Dr F Urano

50:15

Update on TREAT Wolfram clinical trial in Europe

51:56

Progress and Progression of Diabetes Mellitus in Wolfram - Dr B Marshall Trim

37:38

Planning for the Future to protect your child - Legal Renaissance

18:59

RNC & BBS presentation

10:58

Update from Snow Foundation & WS Global Patient Registry

06:34

Abby - Living independently

05:55

Abby - How WS helps to build resilience

03:43

Abby - Life doesn't end when you're diagnosed with WS

03:02

Abby - Finding and asking for help

01:03

Clare with Maggie

00:53

Clare on the tandem

04:21

Clare - Living with a Guide Dog

02:54

Clare's - top tips

01:46

Clare - Crown Green Bowling for Visually Impaired

02:04

Clare - Tandem cycling

03:30

Shane - Living alone with WS

04:19

Aya - Using a cane

05:23

Gavin - Fatigue

05:01

Mr Uddin - Managing my daughter's Diabetes

01:04

Shiffa - "We can do anything other people can do"

02:19

Shiffa - Supporting my younger brother with his WS

01:43

Shiffa - Staying positive at school

02:13

Shiffa - Managing mental health issues

03:57

Shiffa - Living an independent life with vision problems

03:38

Shiffa Finding a job

02:38

Shiffa's - Diagnosis

01:28

Shiffa - Connecting with another WS person

03:54

Shiffa - Achieving success at college and university

04:58

Ayan - Life at University with WS

01:25

Ayan's top tips

04:40

Ayan's Hobbies - origami, reading and hiking

01:08

Ayan - Connecting with others through WSUK and accessing support

02:12

A mum's story

33:26

Psychology Workshop - Gayle McKerracher - Consultant Clinical Psychologist

39:01

Interest in ophthalmology and review of eye findings in Wolfram - Dr Christophe Orssaud

49:30

Novel therapies for Wolfram syndrome Dr Fumihiko Urano

43:06

TREATWolfram Update - \Prof Barrett, Dr renuka Dias and Dr Ben Wright

42:33

Loss of Vision in Wolfram Syndrome - Dr Patrick Yu Wai Man

23:41

Global Patient Registry

21:56

WS Global Awareness Day Tracy Lynch WSUK

01:38

BDB Introduction Video in Urdu

01:32

BDB Introduction Video English

01:58

BDB Introduction Video in Arabic

41:00

PROM Wise webinar 29 01 2021

24:44

Copy of Covid 19 and Vaccinations Update webinar 22 01 2021

34:20

Benefits and Grants webinar 11th December 2020

39:14

TREATWolfram Update

51:55

Echo Dot Demo Webinar 02 10 20 v2

53:51

Optic Nerve Involvement in Wolfram Syndrome - Dr Patrick Yu Wai Man. 26th Sept 2020

37:14

WSUK SaLT Workshop 26th Sept 2020

41:38

WSUK Ophthalmology Benefits and Apps Workshop 26th Sept 2020

16:30

Ver2 4 Bladder function in Wolfram Syndrome

57:39

WSUK July 3rd Webinar

01:00:04

WSUK Webinar 22nd May - Mental Health and Wellbeing

45:15

WSUK Webinar 1 Covid-19. 3rd April 2020