11:03
Rare Disease Day | How I Manage Multiple Rare Diseases
03:39
WEDDING FIRST DANCE GONE HORRIBLY WRONG!
06:08
Happy New Year! 2021 Wrapped Up
05:23
Big Announcement!!!
13:14
Traveling alone for the first time in my wheelchair and how it went
15:03
WORLD RARE DISEASE DAY | What it's like to live with Ehlers Danlos Syndrome
13:28
Disabled Person Reviews L'ange Brush Straightener | Finding easier ways to do my hair
16:47
DON'T FALL FOR EMOTIONAL SUPPORT ANIMAL SCAMS!!!
07:02
I got Medical Marijuana for my Ehlers Danlos Syndrome
05:05
NEW BACKPACK AND WHY I'M HYPED | Chronic Illness Backpack
09:22
WAS I MISDIAGNOSED?!
09:30
My MRI Results!
06:37
Why are people with EDS called Zebras?
03:59
Getting Medical Marijuana in North Dakota
11:33
What is POTS?
08:02
Braces and Mobility Aids I use for my EDS
12:06
Why I was diagnosed with Classical Ehler's Danlos Syndrome
04:05
Seeing an EDS Specialist: Getting Diagnosed!
08:20
How to Act Around Disabled People
04:30
Feeling Like a Burden When You're Disabled
05:28
The Basics of Ehler's Danlos Syndrome
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About
Hi everyone, welcome to my channel!
I’ve suffered with chronic pain almost my entire life, starting at around 8 years old. I’ve been on a life long journey to find out what’s going on with my health, and in June of 2020 I got my answer. I was diagnosed with Ehlers Danlos Syndrome (EDS), a rare genetic disorder that affects my connective tissues due to a mutation in my collagen gene. Join me on my medical journey to find my diagnoses and ways to cope with a degenerative, incurable disorder.
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