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Samuel Phoenix @UCKQyNOzhAOAzNQ6_iknhvCg@youtube.com

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What it’s like living with Carey-Fineman-Ziter Syndrome, one


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What it’s like living with Carey-Fineman-Ziter Syndrome, one of the rarest medical conditions in the world, and how I’m currently the only person in the world with this particular variation of CFZS. I’ll talk about what it’s like to live with and how it’s affected me over time up to present day.