07:42

2.

07:44

1. What I found out-

10:03

I'm scared and im turning the cpap up tonight

08:36

5. Trying to obtain healthcare for rare diseases, complex health issues in Canada 🇨🇦-

08:35

4. Trying to obtain healthcare for rare diseases, complex health issues in Canada 🇨🇦-

08:24

3. Trying to obtain healthcare for rare diseases, complex health issues in Canada 🇨🇦-

08:16

2. Trying to obtain healthcare for rare diseases, complex health issues in Canada 🇨🇦-

08:13

1. Trying to obtain healthcare for rare diseases, complex health issues in Canada 🇨🇦-*Chiari Malfor

09:09

Who I was & literally driven crazy from not sleeping & not getting healthcare & losing everything

14:09

4. One improvement-

03:04

3. One good thing with the sleep....

09:16

2. Continued from last video

11:31

1. Is this going to post??

09:47

How can an entire medical community and family fail someone?

11:06

I'm too young to die. #Chiari 🧠🇨🇦

08:49

4.

08:06

3.

08:15

2.

08:20

1.

08:12

1. We are avoiding important conversations about prescribed drugs - ☠️☠️☠️Sleep apnea and other seri

10:41

Listen to this disrespect-Why disrespect a brain patient like this & refuse to answer questions?

09:23

Disrespectful Physicians-You're in medical crisis & Drs are refusing to answer your questions?

08:22

The severe mental gymnastics throughout this journey, navigating sketchy behaviour-

07:48

Chiari-No relief-No medications- Severe sleep deprivation-Pain-

08:33

3. When you're in medical crisis & medical & family become a danger to you...

08:22

2. When you're in medical crisis & medical & family become a danger to you...

08:16

1. Chiari malformation- fighting for my life here -

08:16

1.

09:02

Who's keeping us safe here from prescribing? I was and am fighting for my life here, why has t

08:10

You don't have to treat diseases that you refuse to acknowledge. Why wasn't I ever being treated as

04:48

I'm a 🇨🇦 Canadian patient with Chiari Malformation fighting for my life-What has all happened here i

01:10

September 30, 2024

08:10

4. Yes doctors make mistakes!! Why we DESPERATELY need educated advocates in Canada:-

08:07

3. I was literally tortured by medical errors - and had to wean off all medications to fight for my

08:03

2. Why we DESPERATELY need MEDICALLY EDUCATED ADVOCATES in Canada!!

08:12

1. Why we desperately need medical advocates - TORTURED because of medical errors -

08:37

What do you think is going to happen here?They're angry at ME for what they've done TO me.Am I goin

08:51

People with Chiari can die (and do sometimes) die in their sleep - Drs too busy to return calls wh

08:27

Literal TORTURE- I don't sleep because I can't breathe because of Chiari Malformation -

02:14

Not being able to sleep because I can't breathe from 🧠 Chiari Malformation

02:33

imagine

08:31

This is the power medications can have on your mind-You can lose your health & life but not reali

08:12

Why do you need to know that you have a couple rare diseases? What??

08:17

Patients are being failed and they refuse to provide advocacy for us -

08:10

How did I become the enemy? I was going to wind up dead from prescribing -

08:09

Those in charge do not care what happens to you - there is no advocacy -nobody to protect you

08:07

🇨🇦Canadian medical system-I'm going to end up losing my life-

08:23

Medical Gaslighting-abuse, refusing to answer patients questions, playing a deadly game

08:03

🇨🇦A brain disease patient(Chiari Malformation)on their own with no advocacy?? How is this possible?

09:11

September 26, 2024

08:54

🇨🇦There are NO medical advocates here!! 🇨🇦 Please!! Let's step up & provide patients help!!

05:40

"Well, that was then. But let's still try to victim blame you...."

08:09

"You're delusional." Guess who's actually delusional?

08:33

Drs creating a narrative that patients are delusional when they're making serious mistakes? I SUFF

08:42

Drs refusing to answer patients questions?

08:15

I can't go on like this -

08:39

Now what?? CPAP or continuewithout & get harmed??

08:38

⚠️ Trigger warning, ugly Benzo wd talk. I'm not well but my breathing is getting stronger.

01:28

September 24, 2024

04:37

CPAP - wth?