30:41

SORRY ITS BEEN A WHILE ( WHATS BEEN GOING ON!)

16:05

MRI PROCTOGRAM RESULTS & MORE

29:40

FEEDING TUBE QUESTIONS ANSWERED

17:02

UPDATE & WHATS BEEN HAPPENING

26:57

LETS TALK PROLONGED HEALING

26:03

ITS BEEN A WHILE (update on what’s been happening)

29:27

LATEST ADMISSION FOLLOWING PEGJ PLACEMENT 😒💔

30:27

PEGJ PLACEMENT

14:02

ITS FINALLY TIME ( PEGJ surgery placement 20/02/23 )

24:00

WHATS BEEN HAPPENING!!

17:11

SOMETHING TO MAKE YOU SMILE

18:29

UPDATE: WHAT HAPPENED AT MY COLORECTAL SURGICAL APPOINTMENT

28:37

TIPS ON HOW I COPE AS A PARENT WITH CHRONIC HEALTH ISSUES

17:32

TUBE NUMBER FIVE PLUS UPDATES

15:09

AND NOW WE WAIT (update)

25:52

SIGMOIDOSCOPY PLUS WHAT COULD BE NEXT

20:37

HIP MRI ARTHROGRAM PLUS MY RESULTS

18:04

MY SKIN CARE ROUTINE WITH AN NJ TUBE (not an AD or Affiliation video)

21:46

NJ TUBE REPLACEMENT AFTER MY LAST ONE CAME BACK UP

24:14

WHAT IS GASTROPARESIS (TW Emetiphobia)

26:22

UPDATE TIME 👍

27:32

BMI & THE IMPACT IT CAN HAVE ON CARE ( Happy Gastroparesis Month )

28:07

Pt 2 INSOMNIA CAUSES WITH CHRONIC HEALTH (TW mention of personal trauma esp 11.03-15:00)

12:06

Pt 1 INSOMNIA & CHRONIC ILLNESS

18:28

DISABILITY PRIDE MONTH & WHAT IT MEANS FOR US

22:51

MEDS WITH FEEDING TUBES & ENTERAL FEEDING

19:03

PERSONAL REVIEW OF THE QUFORA & PERISTEEN CONED IRRIGATION DEVICES (not affiliated/paid to review)

09:32

HOW TO SET UP THE PERISTEEN CONED IRRIGATION SYSTEM

06:48

HOW TO SET UP A CONED TRANSANAL/RECTAL IRRIGATION DEVICE

13:08

HOW I SET UP MY FEED & FLUSH MY NJ (naso jejunostomy) TUBE

23:58

NJ PLACEMENT (TW talk of trauma)

27:03

GOOD NEWS UPDATE

10:18

MY NIGHT TIME SET UP

18:35

HAD ALOT GOING ON (esp pet trouble)

26:35

SUPPORTING SEXUALITY CHOICES & BEING PROUD TO BE YOURSELF #bekind

19:30

DYNAMIC ULTRASOUND (Rib Dislocations/subluxations)

27:30

LATE-ONSET ENDOMETRIAL ABLATION FAILURE (LOEAF) ⚠️MAYBE TRIGGERING ⚠️

14:33

COVID & ITS IMPACT ON THE VULNERABLE

26:51

GASTRO & EDS UPDATES what’s been going on (unedited & TW talk of vomiting)

20:38

GENETIC TESTING EXPERIENCE 👍

17:28

MY GASTRO DRS STRANGE PLAN

17:16

SORRY IT’S BEEN SO LONG

26:13

TUBE UPDATE ( sorry it's been a while )

08:16

MANOMETRY & PH STUDY (my experience)

21:03

Our experience with NEPHROTIC SYNDROME (spreading awareness for world kidney month)

09:13

ISC CATHETERS (my personal preference)

12:37

RARE ILLNESS DAY (all my family rare illnesses listed in details)

21:27

Latest Hospital Admission & Update (note in description about TW nothing shown just talked about)

14:17

GASTRIC EMPTYING RESULTS & ADVOCATION

01:42

Apologies 🙄

13:18

GASTRIC EMPTYING STUDIES

12:17

hEDS, Gastro update

19:50

what's in my going out bag

22:28

gastro issues and not eating

21:01

MRI result well kind of 🤔

01:44

Thank You

23:24

Get to know me 😘

14:35

MRI update

11:37

Updates and equipment I use

14:10

QUARANTINE - what we have been doing