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GSNV Info @UC7TwaPxgrVLeow0-UdyH-oA@youtube.com

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The Genetic Support Network of Victoria (GSNV) was establish


53:53
RareNET OPWM 2024
55:40
OPWM 2024: Trauma Informed Care Within The Diagnostic Environment
02:27:01
GSNV Practical Wellness Month 2023- A Caregiver's Journey
01:51:02
GSNV practical Wellness Month 2023 -Empowering Ethical Decision Making
01:08:50
GSNV Rare Disease Day 2023 "Nothing about us, without us"
03:44
What we know now | Diagnosis Day Episode 7
05:01
Impact of diagnosis | Diagnosis Day Episode 6
04:31
Finding support | Diagnosis Day Episode 5
05:05
The aftermath | Diagnosis Day Episode 4
05:34
Hearing the news | Diagnosis Day Episode 3
04:53
Not knowing | Diagnosis Day Episode 2
02:54
Meet the families | Diagnosis Day Episode 1
01:03
Trailer | Diagnosis Day
01:39:29
Genetic Support Network of Victoria Rare Disease Day Event 2022- recorded
03:32
Rare Disease Day: Lived Experience Series
58:04
How to build confidence in COVID vaccines for the Genetic, Undiagnosed and Rare Disease communities
03:05:02
GSNV Rare Disease Day Virtual Event 2021
08:19
My Genes and Me: Rare Disease Day
01:09
#mygenesandme
09:54
How has your genetic condition impacted you?
09:47
What has been your experience with the health system?
04:08
What is your experience with clinical trials?
05:48
What is your experience with genetic support groups?
05:51
What genetic condition are you supporting?
03:21
Life Insurance
01:41
How do you care for yourself?
01:26:21
Introduction to Violence Against Women with Disabilities webinar
11:46
Genetic Support Network of Victoria Volunteer Orientation 2020
33:33
Caring for Someone with Cystic Fibrosis
30:31
Caring for Two Children with Angelman Syndrome
27:41
Living with and Caring for Two Children with Ehlers-Danlos Syndrome
24:53
Caring for Someone with Pitt-Rogers-Danks Syndrome
11:12
Julie Cini (Spinal Muscular Atrophy Australia)
08:32
Heather Renton (Syndromes Without a Name)
10:36
Emily Shepard (UsherKids Australia)
12:37
Bronwyn Byrne (Leukodystrophy Australia)
14:37
Anna Hickey (Gorlin Syndrome Mutual Support Group)
46:18
Living with Alopecia Areata Universalis
34:40
Living with Neurofibromatosis Type 1
16:49
Living with Neurofibromatosis Type 2
32:03
Living with Cystic Fibrosis
21:57
Living with Huntingtons Disease
18:18
Living with Leukodystrophy
22:39
Living with Leukodystrophy
54:45
Living with Pallister-Hall Syndrome (PHS) and Gelastic Seizures