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MitoAction @UC75JUvR_V4aF0W_wVTXszKQ@youtube.com

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Official Mitochondrial Disease Action Committee channel. Or


01:03:25
DTC Testing - Power & Pitfalls
01:15
SKR Derby Day 2024 - Thank You!
01:01:26
Understanding diseases of mitochondrial DNA maintenance
01:41:52
MitoArtisan's Playtime Course 1
01:13:51
The Cell Danger Response, Healing, and Mitochondrial Disease
01:27:44
FAOD For Beginners
01:01:09
Modeling mitochondrial diseases with patient-derived stem cells and brain organoids
01:16:16
Leigh Syndrome: A Factory for Making Viruses?
48:12
Clinician Panel
42:20
FAOD: Adjunctive Management Strategies
17:33
Political Advocacy 101
02:33:07
2024 Mito Town Meeting
59:58
Stride Study for PMM Patients
43:44
MitoAction Magic Bracelet Screening and Q&A
01:26
Happy Holidays - MitoAction 2023 Recap!
57:40
Infection, Immunity. and FAOD
59:56
Caregiver Panel
57:00
Ultragenyx Commitment to the LC FAOD Patient Community
53:51
SIck Day and Emergency Protocols: Helpful and Potentially Harmful
41:24
Research and Clinical Trials Update
59:33
Preparing for a New Normal in COVID-19 and Being Your Best Advocate
55:14
Pre Clinical Trials Treatment Studies in FAOD
38:32
Practical Tips from the VLCAD Nutrition Guidelines and Toolkit Pt 2
11:50
Practical Tips from the VLCAD Nutrition Guidelines and Toolkit Pt 1
57:55
Newborn Screening in FAOD
01:06:39
MitoAction Mobile- Taking Control of Your Care
44:12
Life Transitions from Pediatric to Adult Patients with Rare Disease
01:08:19
Disability Benefits and Planning
56:54
Acylcarnitines What are They and What do They Mean
01:12:10
Cardiac Issues and FAOD
57:57
Considerations for Rhabdomyolysis And Return to Activity for FAODs
01:02:48
Ceramides: The Unmasked Drivers of VLCADD-Induced Heart Failure
33:15
Open Mito Mic & Art Show
01:22:23
LCHADD Retinopathy Update: Moving Toward a Treatment
01:00:07
Immune Cell Function in Mitochondrial Disease
59:21
Understanding Upcoming MCADD Trials
03:46
Matthew Harty Camper Fund
55:10
Ultra-Rare Mitochondrial Diseases: Development Challenges and Opportunities | October Expert Series
01:03:40
At the Crossroad of Mitochondrial Disease and Mitochondrial Dysfunction
06:10
MitoAction SKR Derby Day Benefit for Mito Waterfall Video
01:11:36
Nitric Oxide Deficiency: potential cause and therapeutic target for SLEs in MELAS
03:57
FAOD MyMito Demo
01:16:01
Expert Series: Traveling with an FAOD
58:40
Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d) Expert Series
01:18:10
Aging with Mito
59:23
Pyruvate Dehydrogenase, Compassionate Use & Clinical Trials
01:13:52
Finding the sweet spot: diagnosis and management of diabetes mellitus and hypoglycemia with mito
01:07:23
Mitochondria and Psychiatry
01:15:32
Wondering Wednesdays: Ask the Genetic Counselor Episode 2
59:37
Expert Series: Stealth BioTherapeutics & NuPOWER Trial Update
01:12:07
Wondering Wednesdays: Ask the Genetic Counselor Episode 1
02:14:50
Mito Town Meeting
01:15:04
Grief and Mito
58:35
Navigating the Financial Minefield of Genetic Testing
01:03:33
Transition TIps for Patients and Parents
01:07:06
LCHADD Retinopathy
52:55
Pandemic Lessons Learned from the Mitochondrial Disease Community
52:00
Transitioning from Pediatric to Adult Care
39:48
Roadmap to Self-Care: Supporting Families and Caregivers of Children with Chronic Illness
55:17
Clinicians' Panel Discussion #2