21:08
2023 Alternative healing techniques for those living with EDS and HSD|Neurodiversity - Dr. Tina Wang
11:26
2023 Global Learning Conference - Neurodiversity and Well-being Session 15: Panel Q&A
20:03
2023 Mentally Dealing with Chronic Pain - Dr. Anne Brito
21:28
2023 Connecting The Dots between Autism, ADHD, Dyspraxia and EDS and HSD - Jane Gre...
23:18
2023 Fireside Chat with Stevie Boebi
25:18
Goal-Directed Communication & Patient Empowerment - Dr. Darby Dickton
26:19
2023 Advocating for yourself and others - Jessica Kellgren-Fozard
23:04
2023 Help over harm: Minimising medical trauma in interactions
23:25
Effective & Efficient Medical Appointments - A Doctors Perspective - Dr. Dacre Knight
24:51
2023 Communicating with Providers - How To Be Your Best Advocate - Dr. Amanda Cassil
18:10
2023 KEYNOTE: How To Find Your Superpower When Living with EDS and HSD - Dayn Broder
28:41
2023 Special Guest Presentation Clinician Associated Traumatization - Dr. Colin Halverson
23:32
2023 - One size does not fit all: Learning to love your bendy body - Anoushé Husain
25:51
2023 KEYNOTE: Health Inequity in EDS & HSD and What We Can Do To Change It - Dr. Akilah Cadet
35:57
Nutrition and EDS - Laurie Bilyeu - 2022 Global Learning Conference
11:53
Blood and Organ Donation in Ehlers-Danlos Syndrome - Dr. Clair Francomano - 2022
11:39
Community Voices - Lisa Marie Schmidt
22:56
School Adaptations and Occupational Therapy - Dr. Jess Salyers - 2022
17:48
Fabricated or Induced Illness (FII): An Exploration of Issues Within the United Kingdom - Emma-L...
22:14
Drug Intolerance in hypermobile EDS and Pharmacogenomics as a Tool - 2022
18:36
hEDS in Pediatric Patients - Dr. Ellen Elias
19:03
Holistic Approaches to Care for Children and Adolescents with Hypermobility and EDS - 2022
27:19
Breaking the Stigma around Sex and Intimacy - Natasha Silverman - 2022
17:57
Why Does Sex Hurt? Vulvar Pain and Pain During Sex - Jennifer Glayzer - 2022
30:56
Psychology & Orthopedic Management Q&A Session - 2022 Global Learning Conference.
26:38
HSD, EDS and Bleeding Disorders - Coincidence or Comorbid? - Dr. Rebecca Schaffer - 2022
21:23
Intro to Medical Cannabis For EDS & HSD Folk - Dr. Jordan Tishler - 2022
20:35
Case Study on a Child with EDS: Physical Therapy - Patricia Stott - 2022
20:04
Keeping Children Active: Physical Therapy - Patricia Stott - 2022
25:29
The Muldowney Protocol 2022 - How it Works and Roadblocks to Progress - Kevin & Kathleen Muldowney
28:05
Bruised, Bleeding, and Broken: Cutaneous Presentations in EDS - Dr. Mark Lavallee
19:55
Pelvic Pain, Bleeding, and Incontinence in EDS & HSD - Dr. Sumana Koduri
21:21
Keeping Children With EDS & HSD Active: A Podiatrist's Perspective - Sophie Roberts
14:23
Case Studies on Children with EDS: Podiatry - Sophie Roberts
06:56
Emily Block - My Sensory Toolbox for Kids - 2022
10:38
Emily Block - My Sensory Toolbox for Teens
22:36
Foot and Ankle Update - Dr. Patrick Agnew - 2022
18:31
The Role of Upper Extremity Surgery in Patients with Joint Hypermobility/EDS - Dr. William Ericson
03:36
Together we dazzle!
01:08
Thank you for an amazing 2023!
26:02
Exercices de respiration et autres mĂ©thodes pour gĂ©rer la douleur et lâanxiĂ©tĂ© - Jeannie Di Bon ...
20:30
Arts, Musique & Adaptation - April Ikeda | French (FR)
20:30
Arte, Musica e Intrattenimento - April Ikeda | Italian (ITA)
26:02
Esercizi di respirazione profonda ed altri modi per gestire dolore e ansia - Jeannie Di Bon | It...
26:05
ExercĂcios de respiração profunda para adolescentes e outras maneiras de controlar a dor e a ans...
25:08
Arte, mĂșsica e enfrentamento (coping) - April Ikeda | Portuguese (POR)
26:04
Ejercicios de respiraciĂłn profunda y otras maneras de gestionar el dolor y la ansiedad - Jeannie...
20:30
Arte, mĂșsica y estrategias de superaciĂłn - April Ikeda | Spanish (ES)
20:31
Junior Zebras Kids - Art, Music & Coping - April Ikeda
26:03
Junior Zebras Teens - Deep Breathing Exercises & Ways to Manage Pain and Anxiety - Jeannie Di Bon
08:35
Pregnancy in Vascular Ehlers-Danlos Syndrome (vEDS) - The Sheffield Experience - Dr. Glenda Sobey
15:57
Pregnancy in Vascular EDS - The Paris Experience - Michael Frank
15:21
Pregnancy in Vascular Ehlers-Danlos Syndrome (vEDS) Panel Q+A
31:20
Gastroenterological Disease in Classical Ehlers-Danlos Syndrome (cEDS) 2022 - Dr. Katja Kovacic
25:58
Pregnancy in classical Ehlers-Danlos syndrome (cEDS) 2022 - Dr. Natalie Blagowidow
28:18
Tools & Strategies for Pregnancy, Childbirth, and Post-Partum in EDS - Jacqui Main
21:10
Family Planning and Pregnancy in Vascular Ehlers-Danlos Syndrome (vEDS) Q&A
17:41
Pregnancy and Childbirth in EDS and HSD Q&A Session - 2022 Global Learning Conference
16:49
High-Risk Pregnancy and Delivery Methods for Women with Ehlers-Danlos Syndromes - Dr. Melissa Russo
22:09
Pregnancy and Early Motherhood in hEDS and HSD - Dr. Sally Pezaro - 2022
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About
The Ehlers-Danlos Society is the global nonprofit organization dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.
Our goals are world-wide awarenessâand a better quality of life for all who suffer from these conditions. Research is at the center of what we do.
Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. We are working towards a time when geography and wealth no longer determine your quality of life. Education is needed to advance early diagnosis and interventionâand post-diagnosis, patients urgently need support and guidance. We want to give hope to all those living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders. Visit ehlers-danlos.com
Any medical information found here should be discussed with your doctors thoroughly before taking action.
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