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How To Turn Your Iphone Into a Head Tracking Communication Device
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THE SIMPLE LIFE | RETT SYNDROME ROAD TRIP IN SOUTH DAKOTA
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DISABLED DOESN'T MEAN UNABLE | MOVING FORWARD (with Rett Syndrome)
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HALFWAY FROM HOME WITH @OurWyomingLife | MOVING FORWARD (AN RV ADVENTURE SERIES)
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A HIDDEN GEM OUTSIDE OF YELLOWSTONE | MOVING FORWARD (a rare roadtrip)
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OPEN SPACE IN MONTANA | MOVING FORWARD (a series about being rare on the roard)
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THE ALPACA RANCH | MOVING FORWARD (RVING WITH RETT SYNDROME )
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ROAD SCHOOL AT A SHEEP DAIRY FARM | MOVING FORWARD (with Rett Syndrome)
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THE BEAUTY OF OREGON | MOVING FORWARD (A DOCUSERIES ABOUT RVING WITH RETT SYNDROME)
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TO THE ENDS OF CALIFORNIA | MOVING FORWARD (with Rett Syndrome)
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WE MADE A BIG RV MISTAKE | MOVING FORWARD (with Rett Syndrome)
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SURPRISE WE MOVED INTO AN RV | MOVING FORWARD (with Rett Syndrome)
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WE GOT STUCK ON A MOUNTAIN | MOVING FORWARD
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OUR FIRST DAY EVER IN THE RV | MOVING FORWARD
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THE ADVENTURE CONTINUES | MOVING FORWARD (OFFICIAL TEASER)
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Magnolia's Hope Documentary (Official Teaser)
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#ReverseRett Today
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Walking with Rett Syndrome
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How is Rett Syndrome Progressive?
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How To Talk to A Non-Verbal Kid
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Another Actual Conversation with Maggie | Rett Syndrome
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An Actual Conversation With Maggie | Rett Syndrome
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Save My Daughter. Share This Video.
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About
Rett Syndrome is a terrible disorder that affects 1 in 10,000 live female births and boys even more rarely. Our daughter, Magnolia, was diagnosed with Rett in 2013. Since her diagnosis, she has lost purposeful hand use and the ability to talk. Scoliosis, feeding tube surgery, and loss of mobility, amongst other maladies are all things she will possibly deal with over the course of her life. In 2007 they were able to reverse the effects of Rett Syndrome in a mouse. Since then, scientists have believed Rett Syndrome is curable.
Please subscribe and share these videos. Through funding and awareness we will be able to save my daughter and the 350,000 like her around the world. Be Magnolia's hope.
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