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VASCERN ERN @UC1sI4_jnqiaLhjNhktiN7ZA@youtube.com

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VASCERN, the European Reference Network on Rare Multisystemi


13:24
Is there a Caucasian Type of Moyamoya?
01:06:05
Bewährtes und Neues zur Moyamoya-Angiopathie
03:29
How can VASCERN help you?
01:17:59
Hereditary Hemorrhagic Telangiectasia (HHT) and Pregnancy
04:42
Pregnancy Series: Pregnancy and Lymphedema
03:47
Pregnancy Series: Delivery and Postpartum care and Lymphedema
05:11
Pregnancy Series: Family Planning and Lymphedema
01:02:40
Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2: Expert Q&A webinar
01:00:40
Everything you wanted to know about vEDS: Expert Q&A
44:16
Genetics and Primary Lymphedema: Q&A with a Clinical Genetics Expert
05:27
Genetic Counseling in Heritable Thoracic Aortic Diseases: What You Need to Know
06:22
VASCERN Rare Disease Day Video 2023
41:22
Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
01:06:08
What Marfan Patients Can Do Before and After Aortic Surgery: Expert Insights with Prof. Kallenbach
32:41
Aortic Surgery in Marfan Syndrome Explained
01:24:06
HHT and Nosebleeds
51:13
Diagnostic and Management Pathway for Capillary Malformations
03:14
Rare Disease Day Video
02:35
Lymphedema from a teenager's perspective
58:17
Diagnostic and Management Pathway for Venous Malformations
02:43
Leo and the FAIR registry
49:56
Diagnostic and Management Pathway for Lymphatic Malformations
55:11
Diagnostic and Management Pathway for Severe and Rare Infantile Hemangiomas | VASCERN Webinar Replay
01:31
Genetic Testing for Primary Lymphedema: A Mother's Perspective
57:42
On Collagen, Ehlers-Danlos Syndromes, and Vascular Fragility: What's in a name? | Webinar Replay
54:52
Hereditary Hemorrhagic Telangiectasia (HHT) and the Lungs: Insights and Q&A | Webinar Replay
01:21:46
Classification of Vascular Anomalies | Webinar Replay
00:33
Deleting a Panel
03:03
Enrolling a Patient
01:21
Inviting Panel Members
01:31
Scheduling Meeting
01:27
Uploading Medical Documents
02:40
Writing an Outcome and Closing a Panel
01:37
Downloading Dicom studies into Desktop
00:31
Switching between Webex and CPMS
46:50
Infections and Lymphedema | Webinar Replay
03:52
VASCERN supports Rare Disease Day!
09:50
What is an Acute Aortic Dissection?
09:43
What is a Chronic Aortic Dissection?
04:19
How is the Aorta Monitored?
08:57
What is Aortic Root Replacement and When is it Indicated?
10:01
What to Know Before and During Pregnancy in Heritable Thoracic Aortic Diseases (HTAD)
07:09
Seven Signs of Marfan Syndrome
01:45
PIK3CA Gene and Related Vascular Malformations
01:27
Mobile App Dataset Editing
00:33
Secure Link using HCP Anywhere
01:06:56
HTAD and COVID-19: Expert Q&A Session | Webinar Replay
01:17
Introduction to Klippel-Trenaunay Syndrome (KTS)
03:51
Treatment for lymphatic malformations
05:14
The lymphatic system & lymphatic malformations
01:01
Lymphedema from a child's perspective
13:05
Vascular Ehlers-Danlos syndrome: Introduction and new criteria
05:45
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 3 - Other rarer types of EDS
05:54
Clinical Features and Diagnostic criteria of vascular Ehlers-Danlos syndrome (vEDS) - Part 1
03:05
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 2 - Kyphoscoliotic EDS
04:46
Genetics of vascular EDS: Part 2 - Pathogenic variants in COL3A1: dominant negative
05:07
Monitoring and Management of vascular Ehlers-Danlos syndrome (vEDS) - Part 3
15:46
Overview of animal studies in vascular Ehlers-Danlos syndrome (vEDS)
06:32
Structure of the Medium-Sized Arteries Working Group (MSA WG) in VASCERN
04:13
Genetics of vascular Ehlers-Danlos syndrome (vEDS) : Part 1 - Pathogenic variants in COL3A1