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HDYO @UCiO73l6SP8_x6Rci_ZX3ZUA@youtube.com

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The Huntington's Disease Youth Organization (HDYO). We're an


39:37
Dual Perspectives Q&A - Part 1
31:44
Professional Experience: Supporting Young People Impacted by HD
13:10
Awards Ceremony
38:50
Speaking to Strangers About HD
22:35
Advocating for the International Community with HD-CAB
38:00
Personal Perspective: Survivor's Guilt
40:27
Power of Social Media
35:38
Preparing for Genetic Testing
32:10
Navigating Relationships
01:22:02
Ask the Experts Panel
29:23
Getting Involved in the HD Community
32:45
Coping with the Ups and Downs of HD
26:20
A Personal Perspective: Engaging with the FDA to Start Big Change
27:06
Let's Celebrate Enroll-HD
27:41
Managing the Many Transitions of JoHD
22:20
Family Impact of JoHD
31:54
Basics of JoHD
28:29
HDYO International Young Adult Welcome
02:35
What It Was Like at HDYO International Congress
03:20
Roche Phase II GENERATION HD2 Study Underway
03:05
HDYO Research Video Series: Disappointing news from Novartis about branaplam and VIBRANT-HD trial
03:15
HDYO Research Video Series: An Update on uniQure and PTC
03:38
Ambassador Top Tips - Holiday Season
54:36
Breaking Down Barriers: Observational Studies
02:07
Ashley Reflects on HDYO's Impact
02:32
We are Grateful for You!
42:23
HDYou Community Stories - Fundraising in the Community
02:45
HDYO Research Video Series: An Update from Roche and Wave Life Sciences
03:06
Research Video Series: Dosage Suspended for VIBRANT-HD Study
40:02
HDYO Casual Conversation with Roche
02:02
Why is JOIN-HD important?
01:01
What is JOIN-HD?
03:07
HDYO Research Video Series - Updates from uniQure
51:43
HDYou Community Stories: Engaging with the FDA
02:22
HDYO Research Video Series: A new roadmap to track Huntington’s disease progression
07:14
Breaking Down Barriers - Behind the Scenes of a Lab Tour
02:42
HDYO Research Series - Oral Drug May Change the Story of Huntingtin Lowering
00:36
HDYO Heads to Glasgow!
02:13
HDYO Research Video Series - Vitamin Therapy in HD
45:11
HDYou: Community Stories Featuring Factor-H
40:38
HDYou Community Stories- A Conversation with Prilenia
00:27
HDYou Community Stories Commercial
01:08
THIS IS IT! The countdown is over for HD Awareness Month!
03:00
HDYO Research Series: Novartis Update with New Oral Therapy for HD
00:48
May Is Our Month!
01:04
JOIN-HD Juvenile Onset HD Registry Now Enrolling
29:32
Research Staging System Study
01:01:18
Sharing Your Story on Social Media
28:23
Neurocrine Update
44:57
My Huntington's IVF Journey
24:30
Understanding Stressors on Young People Impacted by HD
30:19
Huntington's Disguise with Jimmy Pollard
27:15
What to Know Before Genetic Testing
32:04
Novartis Update
30:19
Looking back, looking forward: The PROOF-HD Phase 3 Trial
33:13
Casual Conversation with Roche
27:18
HD CAB
58:49
Research Breakdown with HD Buzz, HDYO and HDSA
17:35
Wave Life Sciences Update
01:32:16
Testing Negative, Testing Positive and Deciding Not to Test