34:01
A Rare Reality, Season 2, Episode 20 – Owning My Story
13:18
A Rare Reality, Season 2, Episode 19 – Cut Us Some Slack
26:36
A Rare Reality, Season 2, Episode 18: New Family Guide (Encore Edition)
11:06
A Rare Reality, Season 2, Episode 17 – 2022 Conference Recap
47:03
A Rare Reality, Season 2, Episode 16 – The Story of Frank
12:17
A Rare Reality, Sesaon 2, Episode 15 – Canine Companions
49:29
2022 JGA Family Conference – Clinical Data and Research Update
01:24:36
2022 JGA Family Conference – JGA Update
01:18:44
2022 JGA Family Conference – Ask the Experts Panel
01:50
2022 JGA Family Conference: Welcome Video
11:51
A Rare Reality, Season Two, Episode 14 – Family Conference Update #3
06:23
JGA Connection – Summer 2022
26:40
A Rare Reality, Sesaon 2, Episode 13 – Meet Your JGA Ambassadors
01:22:29
Ask Me Anything – JGA 2022 Conference: "The Sky Is The Limit"
20:18
A Rare Reality, Season Two, Episode Twelve – Sibling Series, Part Two
17:27
A Rare Reality, Season 2, Episode 11 – Sibling Series, Part One
20:52
A Rare Reality – Season Two, Episode 10 – Family Conference Update #2
24:43
A Rare Reality, Season 2, Episode 9 – The Sky is the Limit for Lexi
17:36
A Rare Reality, Season 2, Episode 8 – Meet the Akari Foundation
17:10
A Rare Reality, Season 2, Episode 7 – JGA Conference Update
07:15
JGA Connection – Spring 2022
22:33
A Rare Reality, Season Two, Episode Six – The Piglet Mindset
01:13
JGA Fundraiser How-To
15:25
A Rare Reality, Episode Fifteen: A Conversation with MamaBearForRare
21:44
A Rare Reality, Episode Fourteen – Living Ultra Rare, A converastion with Jill Hawkins
16:19
A Rare Reality – Episode Thirteen – Talking Rare Disease Week!
30:18
A Rare Reality, Episode Twelve: A Rare Dad’s Powerful Story & How to Tell Yours with Daniel DeFabio
19:45
A Rare Reality, Episode Ten – We Are Thankful
17:34
A Rare Reality, Episode Eleven – Looking Ahead at 2022
13:23
JGA Connection – Winter 2021
17:09
Dr Kyle Fink
08:45
A Rare Reality – Episode Nine, Getting to the Heart of the Matter
26:36
A Rare Reality, Episode Eight A Step by Step Guide for Newly Diagnosed Families
28:27
A Rare Reality – Episode Six: Bringing Speech & Language to Life
10:15
A Rare Reality – Episode Seven, A Rare Reflection
05:38
A Rare Reality – Episode Five You Are Not Alone – Becoming the Experts
07:25
A Rare Reality, Episode Two – You Are Not Alone: Acceptance
11:11
A Rare Reality – Episode Three, A Rare Reflection, Michelle Fruhschien
54:12
A Rare Reality – Episode One
29:20
A Rare Reality, Episode Four – Journey to a Cure, How Did We Get Here?
03:09
JGA – Race for a Cure
17:09
Dr Kyle Fink
04:08
2019 Family Conference & April Update
04:08
Jordan's Guardian Angels April 2019 Update Spanish Subtitles
13:34
Dr Brian Wadzinski
09:17
Dr Hough Xia
10:34
Dr Wendy Chung
04:08
Jordan's Guardian Angels April 2019 Update with Arabic Subtitles
38:18
Dr Veerle Janssens
31:27
Dr Ron Merrill
25:11
Dr Yongna Xing
19:03
Dr Jan Nolta
23:00
Dr Richard Honkanen
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