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Bardet-Biedl Syndrome UK @UCO2S6Izqoa0FFIMEpsB3XiA@youtube.com

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Bardet-Biedl Syndrome UK is the only registered charity supp


27:37
Introduction to Microsoft and Accessibility: David Prince
21:59
Maintaining Wellbeing across the BBS lifespan: Dr Jane Waite
16:05
Personal Perspective: Ciaran Moy
52:23
Obesity and how we manage weight in BBS: Dr Elizabeth Forsythe, Dr Lukas Foggensteiner, Sarah Flack
41:35
Update on Research of BBS: Prof. Phil Beales & Research Questionnaire: Prof. Helen May-Simera
22:28
Urology Differences in BBS: Dr David Game
15:34
Thomas Pocklington Trust: Matt Harrison & Sight Loss Councils: Rachael Foley
21:36
Update on BBS UK Services: Tonia Hymers
05:05
Welcome to the 2023 BBS UK Annual Conference: Laura Dowswell, BBS UK Chair
01:45:01
BBS UK Spring Newsletter 2023
35:07
BBS UK Conference 2022: A Personal Perspective: Sarah Leadbetter
05:09
Global BBS Day
26:55
BBS UK Conference 2022: Update on Research and Study of BBS: Prof Phil Beales
11:19
BBS UK Conference 2022: BBS Registry: Dr Elizabeth Forsythe
03:30
BBS UK Conference 2022: Chair's Welcome: Laura Dowswell
01:34
BBS UK Conference 2022: Round up of the Day: Laura Dowswell
22:49
BBS UK Conference 2022: Research into Neurodevelopmental Profiles of Children with BBS
09:51
BBS UK Conference 2022: BBS UK Advice Service: Rebecca Perfect, Advice Service Manager
19:55
BBS UK Conference 2022: Using Stem Cells to Study Kidney Disease in BBS: James Williams, PhD Student
18:56
BBS UK Conference 2022: BBS UK Past, Present and Future: Tonia Hymers, Operations Manager
13:18
BBS UK Conference 2022: Guide Dogs: Kerry Kernan
11:55
BBS UK Conference 2022: Update on Setmelanotide obesity drug
23:50
BBS UK Conference 2022: LOOK UK, Elin Williams, Mentor Development Co ordinator
13:41
BBS UK Conference 2022: A Global Perspective: Tim Ogden President, BBS Family Association USA
02:43
Closing Remarks BBS UK Conf 15 5 21
10:49
Fundraising for BBS UK Conf 15 5 21
10:07
Gareth Owens: a personal perspective of Bardet-Biedl syndrome
15:12
09 Hannah Rowlatt RNIB - BBS UK Conference 15.05.21
14:36
08 Emmy Anstee - Personal Perspective - BBS UK Conference 15.05.21
09:47
07 Tanja Chaudhry - Personal Perspective - BBS UK Conference 15.05.21
10:49
06 Five Year Strategy & Membership Audit (Tonia Hymers) BBS UK Conference 15.05.21
20:26
05 Professor Helen May-Simera BBS UK Conference 15.05.21
12:13
04 Dr Forsythe BBS UK Conference 15.05.21
19:11
03 Home Testing Equipment (Professor Tim Barrett) BBS UK Conference 15.05.21
29:16
02 Dr Walker Dr McGibbon BBS UK Conference 15.05.21
02:24
01 Chair Welcome to BBS UK Conference 15.05.21
12:50
08 Services and Resources BBS UK Conference 14.05.21
03:48
Closing Remarks BBS UK Conference 14.05.21
14:33
11 Rhona Personal Perspective BBS UK Conference 14.05.21
12:09
09 Helen Personal Perspective BBS UK Conference 14.05.21
07:37
07 BBS Clinics BBS UK Conference 14.05.21
17:30
05 Sarah Flack BBS UK Conference 14.05.21
25:16
04 Dr Waite BBS UK Conference 14.05.21
36:30
03 Dr Haws BBS UK Conference 14.05.21
27:52
02 Professor Beales BBS UK Conference 14.05.21
04:02
01 Vice Chair Welcome to BBS UK Conference 14.05.21
36:11
BBS UK Education Webinar - 8th Oct 2020
16:32
Staying Well: Managing anxiety around Coronavirus
30:08
Wilkie Warriors Fundraising Year
16:32
Living With BBS A Personal Perspective
25:44
Slimming World
10:31
Park Run Journey: Tom Oates
15:07
The Importance of Whole Family Support
14:41
RNIB Celebrating 150 Years
17:30
Breaking Down Barriers
16:59
BBS Clinics and Telemedicine Service
28:14
Setmalenotide: a treatment for obesity in rare genetic disorders
13:28
How Your Wee Can Help Us Understand BBS
22:13
Update on Research and Study of BBS
19:25
BBS UK AGM 2019